Jeremic Vida, Sénécal Karine, Borry Pascal, Chokoshvili Davit, Vears Danya F
School of Medicine of University of Belgrade, Dr Subotica 8, Belgrade, 11000, Serbia.
Centre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, 740, avenue Dr. Penfield, #5202, Montreal, Quebec, Canada, H3A 0G1.
J Bioeth Inq. 2016 Dec;13(4):525-534. doi: 10.1007/s11673-016-9747-8. Epub 2016 Sep 21.
Participation in healthcare decision-making is considered to be an important right of minors, and is highlighted in both international legislation and public policies. However, despite the legal recognition of children's rights to participation, and also the benefits that children experience by their involvement, there is evidence that legislation is not always translated into healthcare practice. There are a number of factors that may impact on the ability of the child to be involved in decisions regarding their medical care. Some of these factors relate to the child, including their capacity to be actively involved in these decisions. Others relate to the family situation, sociocultural context, or the underlying beliefs and practices of the healthcare provider involved. In spite of these challenges to including children in decisions regarding their clinical care, we argue that it is an important factor in their treatment. The extent to which children should participate in this process should be determined on a case-by-case basis, taking all of the potential barriers into account.
参与医疗保健决策被视为未成年人的一项重要权利,在国际立法和公共政策中均有强调。然而,尽管儿童参与权得到了法律认可,而且儿童参与也给他们带来了诸多益处,但有证据表明,相关立法并非总能转化为医疗实践。有许多因素可能会影响儿童参与自身医疗决策的能力。其中一些因素与儿童自身有关,包括他们积极参与这些决策的能力。其他因素则涉及家庭状况、社会文化背景或相关医疗服务提供者的潜在信念和做法。尽管在让儿童参与临床护理决策方面存在这些挑战,但我们认为这是其治疗中的一个重要因素。儿童参与这一过程的程度应根据具体情况来确定,要考虑到所有潜在障碍。