D'Amico Emanuele, Zanghì Aurora, Patti Francesco, Zappia Mario
a Department of Medical and Surgical Sciences and Advanced Technologies G.F. Ingrassia , Policlinico G. Rodolico , Catania , Italy.
Expert Rev Neurother. 2017 Feb;17(2):123-127. doi: 10.1080/14737175.2017.1245615. Epub 2016 Oct 20.
Multiple sclerosis (MS) is a progressive disease of the central nervous system with unknown etiology. It could be associated with severe disability and losses of physical, psychological and social role functioning over time. People with MS share experiences in common with people affected by diseases with a shorter and clearer terminal phase. Therefore, it is appropriate to offer a palliative care approach to people with severe MS and their caregivers. Areas covered: Benefits for severe MS patients and their caregivers were shown when palliative care was included in their care. However, many neurologists show no interest toward palliative care services for people with severe MS. Misunderstandings about the services of palliative care are still prevalent. Expert commentary: When all results are considered, they show that palliative care for severe MS patients may be beneficial. The five-year view will discuss the barriers of palliative care inclusion for people with severe MS.
多发性硬化症(MS)是一种病因不明的中枢神经系统进行性疾病。随着时间的推移,它可能会导致严重残疾以及身体、心理和社会角色功能的丧失。患有MS的人与受终末期较短且更明确的疾病影响的人有共同的经历。因此,为重度MS患者及其护理人员提供姑息治疗方法是合适的。涵盖领域:当姑息治疗纳入重度MS患者及其护理人员的护理中时,显示出了益处。然而,许多神经科医生对为重度MS患者提供姑息治疗服务不感兴趣。对姑息治疗服务的误解仍然普遍存在。专家评论:综合所有结果来看,它们表明为重度MS患者提供姑息治疗可能是有益的。五年展望将讨论重度MS患者接受姑息治疗的障碍。