Main Regional Center of Pain Relief and Supportive/Palliative Care (S.M.), La Maddalena Cancer Center, Regional Home care program, SAMOT, Palermo, Italy.
J Pain Symptom Manage. 2024 May;67(5):e425-e437. doi: 10.1016/j.jpainsymman.2024.01.006. Epub 2024 Jan 13.
Multiple sclerosis (MS) is an inflammatory, chronic, demyelinating, and neurodegenerative disorder of central nervous system, determined by an auto-immune dysfunction. Severe disability generally occurs in patients with progressive forms of MS that typically develop either after an earlier relapsing phase or less commonly from disease onset. Despite advances in research to slow the progression of MS, this condition remains a life-limiting disease with symptoms impacting negatively the lives of patients and caregivers.
To analyze the difefrent aspects of palliative cae in patients with MS.
To analyse selected literature assessing several palliative care aspects in patients with MS.
People with MS have complex symptoms and different needs. These demands include how to deal with the burden of physical disability, how to organise daily life, restructuring social roles in the family and at work, keeping self-sufficiency in personal care, and preserving personal identity and community roles.
An early palliative care approach aims to improve the palliative care skills and competencies of health professionals caring for the patients since the early stage of disease, including those who are actively undergoing disease-targeted therapies, rather than merely providing end-of-life care.
多发性硬化症（MS）是一种中枢神经系统的炎症性、慢性、脱髓鞘和神经退行性疾病，由自身免疫功能障碍引起。严重残疾通常发生在进展型 MS 患者中，这些患者通常在早期复发阶段后发展为进展型，或者不太常见地从疾病发病开始。尽管在减缓 MS 进展的研究方面取得了进展，但这种疾病仍然是一种限制生命的疾病，其症状对患者和护理人员的生活产生负面影响。
分析多发性硬化症患者姑息治疗的不同方面。
分析评估多发性硬化症患者姑息治疗几个方面的选定文献。
多发性硬化症患者有复杂的症状和不同的需求。这些需求包括如何应对身体残疾的负担，如何组织日常生活，在家庭和工作中重新调整社会角色，保持个人自理能力，以及保持个人身份和社区角色。
早期姑息治疗方法旨在提高照顾患者的卫生专业人员的姑息治疗技能和能力，从疾病的早期阶段开始，包括那些正在积极接受疾病靶向治疗的患者，而不仅仅是提供临终关怀。
