Wint Amy J, Smith Diane L, Iezzoni Lisa I
Amy J. Wint, MSc, is Project Manager, Mongan Institute Health Policy Center, Massachusetts General Hospital, Boston;
Diane L. Smith, PhD, OTR/L, FAOTA, is Professor, Department of Occupational Therapy, MGH Institute of Health Professions, Boston, MA.
Am J Occup Ther. 2016 Nov/Dec;70(6):7006220060p1-7006220060p7. doi: 10.5014/ajot.2016.021477.
This study describes how women with physical disability experience caregiving for a new infant and how they adapt their home environment and care tasks.
In 2013, we conducted 2-hr telephone interviews with 22 women with significant physical disability who had delivered babies within the previous 10 yr. The semistructured, open-ended interview protocol addressed wide-ranging pregnancy-related topics. NVivo was used to sort the texts for content analysis.
Night care, bathing, and carrying the baby were identified as the biggest challenges. Typical adaptations (with and without occupational therapy consultation) included use of a wrap for carrying the infant, furniture adaptations for mothers using wheelchairs, and assistance from caregivers.
Women with physical disability can be fully capable of caring for an infant and can find ways to adapt their environment. Further research may determine the role of occupation therapy.
本研究描述了身体残疾的女性如何体验照顾新生婴儿的过程，以及她们如何调整家庭环境和护理任务。
2013年，我们对22名在过去10年内分娩的身体有严重残疾的女性进行了为时2小时的电话访谈。半结构化、开放式访谈方案涉及广泛的与怀孕相关的话题。使用NVivo对文本进行分类以进行内容分析。
夜间护理、给婴儿洗澡和抱婴儿被认为是最大的挑战。典型的调整措施（有或没有职业治疗师的咨询）包括使用婴儿背巾、为使用轮椅的母亲对家具进行调整以及护理人员提供协助。
身体残疾的女性完全有能力照顾婴儿，并能找到适应环境的方法。进一步的研究可能会确定职业治疗的作用。
