Wentlandt Kirsten, Dall'Osto Angela, Freeman Nicole, Le Lisa W, Kaya Ebru, Ross Heather, Singer Lianne G, Abbey Susan, Clarke Hance, Zimmermann Camilla
Department of Supportive Care, University Health Network, Toronto, ON, Canada.
Department of Family and Community Medicine, University of Toronto, Toronto, ON, Canada.
Clin Transplant. 2016 Dec;30(12):1591-1596. doi: 10.1111/ctr.12838. Epub 2016 Nov 4.
Although patients within a transplant program are awaiting or have received disease modifying or curative treatment, they are also facing advanced illness and the possibility of death. The involvement of specialized palliative care services for these patients may improve symptom management and facilitate advance care planning. However, patients in organ transplantation programs have difficulty accessing palliative care resources and often do so only sporadically in the inpatient setting. Currently, there is little access to ambulatory palliative care for these patients and there have been no descriptions of programs delivering such care in the medical literature. We outline the development and structure of a Transplant Palliative Care Clinic within the University Health Network's Multi-Organ Transplant Program, in Toronto, Canada. This information may be helpful for others aiming to provide early, integrated palliative care to patients awaiting and receiving organ transplantation.
尽管移植项目中的患者正在等待或已经接受了疾病改善或治愈性治疗，但他们也面临着晚期疾病和死亡的可能性。为这些患者提供专业的姑息治疗服务可能会改善症状管理并促进预先护理计划。然而，器官移植项目中的患者难以获得姑息治疗资源，并且通常仅在住院环境中偶尔获得。目前，这些患者很少能获得门诊姑息治疗，医学文献中也没有关于提供此类护理的项目的描述。我们概述了加拿大多伦多大学健康网络多器官移植项目中移植姑息治疗诊所的发展和结构。这些信息可能对其他旨在为等待和接受器官移植的患者提供早期综合姑息治疗的人有所帮助。
