Normansell Rebecca, Welsh Emma
Population Health Research Institute, St George's University of London, Cramner Terrace, SW17 0RE UK.
Asthma Res Pract. 2015 Sep 29;1:11. doi: 10.1186/s40733-015-0011-5. eCollection 2015.
Involving patients and the public in research prioritisation is important. Cochrane Airways works with authors to produce systematic reviews of evidence related to chronic airways disease. Cochrane Airways has undertaken activities to identify research priorities, including workshops with stakeholders and consultation with experts. We present the findings of an online survey, designed to align our work with the priorities of people affected by asthma.
We promoted a survey comprising open-ended questions via social media to people affected by asthma. We compiled the free-text responses and conducted an exploratory thematic analysis to identify important barriers and facilitators to asthma control. We triangulated findings with other research prioritisation activities to produce new review questions.
We received 57 survey responses. Eight main themes emerged, most encompassing both facilitators and barriers: attitudes and knowledge; financial costs; environmental factors and triggers; healthcare systems; lifestyle factors; medication; self-care; and support. Barriers were more frequently mentioned than facilitators and many related to healthcare systems.
These findings offer valuable insights into the challenges faced by individuals affected by asthma in the UK, and possibly further afield. We developed a list of priority reviews based on what was said by people in this survey and at a workshop. This demonstrates the real impact that people affected by asthma have on the research agenda of Cochrane Airways. Over the next 2-3 years we will produce reviews that address some of these questions hopefully leading to health benefits.
让患者和公众参与研究优先级的确定很重要。Cochrane Airways与作者合作，对与慢性气道疾病相关的证据进行系统评价。Cochrane Airways开展了确定研究优先级的活动，包括与利益相关者举办研讨会以及咨询专家。我们展示了一项在线调查的结果，该调查旨在使我们的工作与哮喘患者的优先事项保持一致。
我们通过社交媒体向哮喘患者推广了一项包含开放式问题的调查。我们汇总了自由文本回复，并进行了探索性主题分析，以确定哮喘控制的重要障碍和促进因素。我们将调查结果与其他研究优先级确定活动进行三角互证，以提出新的综述问题。
我们收到了57份调查回复。出现了八个主要主题, 大多数主题都包含促进因素和障碍：态度和知识；经济成本；环境因素和触发因素；医疗保健系统；生活方式因素；药物治疗；自我护理；以及支持。提及障碍的频率高于促进因素，且许多障碍与医疗保健系统有关。
这些发现为英国及可能更远地区的哮喘患者所面临的挑战提供了宝贵的见解。我们根据本次调查和一次研讨会上人们所说的内容制定了一份优先综述清单。这表明哮喘患者对Cochrane Airways研究议程产生的实际影响。在接下来的两到三年里，我们将进行一些综述，以解决其中一些问题，有望带来健康益处。
