Prütz Franziska, Saß Anke-Christine
Abteilung für Epidemiologie und Gesundheitsmonitoring, Robert Koch-Institut, General-Pape-Straße 62, 12101, Berlin, Deutschland.
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2017 Jan;60(1):26-36. doi: 10.1007/s00103-016-2483-8.
Palliative care is more and more in the focus of politics and the public. Although provision and utilization of palliative care have increased considerably in recent years, there is still a great need for palliative services and a comprehensive supply has not yet been achieved. Reliable and continually available data are indispensable to describe developments in Germany, to identify existing gaps in palliative care provision, and to assess the impact of relevant policies. In this article, we present a systematic outline of publicly available data sources on palliative care in Germany and point out their potentials and limitations. We show that mainly data on palliative care provision are available. Data on utilization are basically limited to inpatient and specialized outpatient palliative care ("spezialisierte ambulante Palliativversorgung", SAPV). Periodical analyses of routine data, e. g. from statutory health insurances or from the Association of Statutory Health Insurance Physicians, would be helpful to fill these data gaps. Monitoring the sociodemographic characteristics of users of palliative care could also be of major interest. Another important indicator is the place of death. The difference between the places where people die and where they wish to die indicates that there is a continuous need to strengthen outpatient structures of palliative care.
姑息治疗越来越受到政界和公众的关注。尽管近年来姑息治疗的提供和利用有了显著增加，但对姑息治疗服务仍有巨大需求，且尚未实现全面供应。可靠且持续可用的数据对于描述德国的发展情况、确定姑息治疗提供方面存在的差距以及评估相关政策的影响不可或缺。在本文中，我们对德国公开可用的姑息治疗数据源进行了系统概述，并指出了它们的潜力和局限性。我们表明，目前主要可获取的是关于姑息治疗提供的数据。利用数据基本上仅限于住院和专科门诊姑息治疗（“专科门诊姑息治疗”，SAPV）。定期分析常规数据，例如来自法定健康保险机构或法定医疗保险医师协会的数据，将有助于填补这些数据空白。监测姑息治疗使用者的社会人口学特征也可能具有重要意义。另一个重要指标是死亡地点。人们实际死亡地点与他们希望死亡地点之间的差异表明，持续需要加强姑息治疗的门诊结构。
