Wolfler Andrea, Giannini Alberto, Finistrella Martina, Salvo Ida, Calderini Edoardo, Frasson Giulia, Dall'Oglio Immacolata, Di Furia Michela, Iuzzolino Rossella, Musicco Massimo, Latour Jos M
1Department of Anesthesia and Intensive Care, Children's Hospital V Buzzi-Istituti Clinici di Perfezionamento, Milan, Italy. 2Pediatric Intensive Care Unit, Fondazione IRCCS Ca' Granda-Ospedale Maggiore Policlinico, Milan, Italy. 3Child and Adolescent Neuropsychiatric Unit, Fondazione IRCCS Ca' Granda-Ospedale Maggiore Policlinico, Milan, Italy. 4Professional Development Continuing Education and Nursing Research Service-Medical Direction, Children's Hospital Bambino Gesù, IRCCS, Rome, Italy. 5Department of Anesthesia and Intensive Care, Children's Hospital Bambino Gesù, IRCCS, Rome, Italy. 6Department of Pediatric Medical Surgical Cardiology, Children's Hospital Bambino Gesù, IRCCS, Rome, Italy. 7Institute of Biomedical Technologies, National Research Council, Milan, Italy. 8School of Nursing and Midwifery, Faculty of Health and Human Sciences, Plymouth University, Plymouth, United Kingdom. 9School of Nursing, Midwifery and Paramedicine, Faculty of Human Science, Curtin University, Perth, Australia.
Pediatr Crit Care Med. 2017 Feb;18(2):e77-e85. doi: 10.1097/PCC.0000000000001031.
To translate and validate the EMpowerment of PArents in THe Intensive Care questionnaire to measure parent satisfaction and experiences in Italian PICUs.
Prospective, multicenter study.
Four medical/surgical Italian PICUs in three tertiary hospitals.
Families of children, 0-16 years old, admitted to the PICUs were invited to participate. Inclusion criteria were PICU length of stay greater than 24 hours and good comprehension of Italian language by parents/guardians. Exclusion criteria were readmission within 6 months and parents of a child who died in the PICU.
Distribution, at PICU discharge, of the EMpowerment of PArents in THe Intensive Care questionnaire with 65 items divided into five domains and a six-point rating scale: 1 " certainly no" to 6 "certainly yes."
Back and forward translations of the EMpowerment of PArents in THe Intensive Care questionnaire between Dutch (original version) and Italian languages were deployed. Cultural adaptation of the instrument was confirmed by a consultation with a representative parent group (n = 10). Totally, 150 of 190 parents (79%) participated in the study. On item level, 12 statements scored a mean below 5.0. The Cronbach's α, measured for internal consistency, on domain level was between 0.67 and 0.96. Congruent validity was measured by correlating the five domains with four gold standard satisfaction measures and showed adequate correlations (rs, 0.41-0.71; p < 0.05). No significant differences occurred in the nondifferential validity testing between three children's characteristics and the domains; excepting parents with a child for a surgical and planned admission were more satisfied on information and organization issues.
The Italian version of the EMpowerment of PArents in THe Intensive Care questionnaire has satisfactory reliability and validity estimates and seems to be appropriate for Italian PICU setting. It is an important instrument providing benchmark data to be used in the process of quality improvement toward the development of a family-centered care philosophy within Italian PICUs.
翻译并验证“重症监护中家长赋权”问卷，以衡量意大利儿科重症监护病房（PICU）中家长的满意度和体验。
前瞻性多中心研究。
三家三级医院的四家意大利医疗/外科PICU。
邀请入住PICU的0至16岁儿童的家庭参与。纳入标准为PICU住院时间超过24小时且家长/监护人对意大利语有良好理解能力。排除标准为6个月内再次入院以及孩子在PICU死亡的家长。
在PICU出院时发放“重症监护中家长赋权”问卷，该问卷有65个项目，分为五个领域，采用六点量表评分：1“肯定没有”至6“肯定有”。
对“重症监护中家长赋权”问卷在荷兰语（原始版本）和意大利语之间进行了回译和正译。通过与一个有代表性的家长群体（n = 10）协商确认了该工具的文化适应性。总共190名家长中有150名（79%）参与了研究。在项目层面，12条陈述的平均分低于5.0。在领域层面测量的内部一致性Cronbach's α在0.67至0.96之间。通过将五个领域与四项金标准满意度测量指标进行相关性分析来测量同质性效度，结果显示相关性良好（rs，0.41 - 0.71；p < 0.05）。在三项儿童特征与各领域之间的无差异效度测试中未发现显著差异；除了孩子因手术和计划入院的家长在信息和组织问题上更满意。
“重症监护中家长赋权”问卷的意大利语版本具有令人满意的信度和效度估计，似乎适用于意大利PICU环境。它是一个重要工具，可提供基准数据，用于在意大利PICU中朝着以家庭为中心的护理理念发展的质量改进过程中使用。
