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癌症患者的非正式护理。

Informal caregiving for cancer patients.

机构信息

Experimental Unit of Psycho-Oncology, Department of Critical Area and Surgery, National Cancer Research Center Istituto Tumori Giovanni Paolo II, Bari, Italy.

出版信息

Cancer. 2013 Jun 1;119 Suppl 11(0 11):2160-9. doi: 10.1002/cncr.28057.

DOI:10.1002/cncr.28057
PMID:23695928
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3816360/
Abstract

According to the recent worldwide estimation by the GLOBOCAN project, in total, 12.7 million new cancer cases and 7.6 million cancer deaths occurred in 2008. The worldwide number of cancer survivors within 5 years of diagnosis has been estimated at be almost 28.8 million. Informal caregivers, such as family members and close friends, provide essential support to cancer patients. The authors of this report provide an overview of issues in the study of informal caregivers for cancer patients and long-term survivors in the United States and Europe, characterizing the caregivers commonly studied; the resources currently available to them; and their unmet needs, their psychosocial outcomes, and the psychosocial interventions tailored to their special circumstances. A broad overview of the state of research and knowledge, both in Europe and the United States, and observations on the directions for future research are provided.

摘要

根据全球癌症观察站(GLOBOCAN)项目最近的全球估计,2008 年共有 1270 万例新癌症病例和 760 万例癌症死亡。在诊断后 5 年内,全球癌症幸存者的数量估计约为 2880 万。非专业照护者,如家庭成员和亲密朋友,为癌症患者提供重要支持。本报告的作者概述了美国和欧洲癌症患者和长期幸存者的非专业照护者研究中的问题,描述了常见的照护者;他们目前可获得的资源;以及他们未满足的需求、他们的心理社会结局,以及针对其特殊情况量身定制的心理社会干预措施。提供了对欧洲和美国研究状况和知识的广泛概述,并就未来研究的方向提出了意见。

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本文引用的文献

1
Global estimates of cancer prevalence for 27 sites in the adult population in 2008.2008 年全球 27 个成人部位癌症发病估计数。
Int J Cancer. 2013 Mar 1;132(5):1133-45. doi: 10.1002/ijc.27711. Epub 2012 Jul 26.
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Culture and end of life care: a scoping exercise in seven European countries.文化与临终关怀:七个欧洲国家的探索性研究。
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Psychooncology. 2012 Mar;21(3):273-81. doi: 10.1002/pon.1888. Epub 2010 Dec 20.
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Racial variation in the cancer caregiving experience: a multisite study of colorectal and lung cancer caregivers.癌症照护体验中的种族差异:结直肠癌和肺癌照护者的多地点研究。
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Sexual, psychological, and relational functioning in women after surgical treatment for vulvar malignancy: a literature review.外阴恶性肿瘤手术后女性的性功能、心理和性关系:文献综述。
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Cancer distress reduction with a couple-based skills training: a randomized controlled trial.夫妻为基础的技能训练对癌症患者痛苦的降低效果:一项随机对照试验。
Ann Behav Med. 2012 Apr;43(2):239-52. doi: 10.1007/s12160-011-9314-9.
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Partners and close family members of long-term cancer survivors: health status, psychosocial well-being and unmet supportive care needs.长期癌症幸存者的伴侣和直系亲属:健康状况、心理社会福祉和未满足的支持性护理需求。
Psychooncology. 2013 Jan;22(1):12-9. doi: 10.1002/pon.2050. Epub 2011 Sep 9.
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End-of-life care across Southern Europe: a critical review of cultural similarities and differences between Italy, Spain and Portugal.南欧的临终关怀:意大利、西班牙和葡萄牙文化异同的批判性评价。
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Palliat Med. 2012 Jan;26(1):7-22. doi: 10.1177/0269216311409613. Epub 2011 Jul 7.