Hartie Kevin J, Smith Jonathan A
Department of Psychological Sciences, Birkbeck, University of London , London, UK.
Spinal Cord Ser Cases. 2016 Jul 7;2:16015. doi: 10.1038/scsandc.2016.15. eCollection 2016.
The paper presents an in-depth idiographic study exploring the experience of fathers who have an adult son with a cervical spinal cord injury (SCI). Five participants were recruited and individual semi-structured interviews were conducted. The interviews were transcribed verbatim and analyzed using interpretative phenomenological analysis. Two superordinate themes are presented highlighting. First, the ongoing negative impact of their sons' injury on the participants' role as fathers'. This comprises the negative impact on emotions with guilt common for failing in their perceived role as a father. The dissonance experienced between wanting to help encourage their sons' independence. Concern experienced due to their sons altered life trajectory and anxiety because they would not be alive to protect their son in the future. Second, how participants cope and adjust to their son's SCI are presented. Comprising of how positive thinking, such as focusing on their son surviving the trauma and the influence of seeing their son cope well affects how participants cope. Also, reflecting on how the injury has changed their life helps participants, to an extent, make sense of the trauma. The results are discussed in relation to the relevant extant literature to give a unique perspective about how SCI impacts their perceived role as fathers and the struggle to cope and adjust to the trauma. Future research investigating the impact of SCI on the family is warranted to better understand the wider implications.
本文呈现了一项深入的个案研究,探讨成年儿子患有颈脊髓损伤(SCI)的父亲们的经历。招募了五名参与者并进行了个人半结构化访谈。访谈内容逐字转录,并采用解释现象学分析方法进行分析。呈现了两个突出的上位主题。首先,儿子的损伤对参与者作为父亲的角色产生持续的负面影响。这包括对情绪的负面影响,因在他们所认为的父亲角色中失败而产生内疚感。在想要帮助鼓励儿子独立与实际情况之间存在的不一致。由于儿子改变的生活轨迹而产生的担忧,以及因为担心自己未来无法活着保护儿子而产生的焦虑。其次,介绍了参与者如何应对和适应儿子的脊髓损伤。包括积极的思维方式,如关注儿子在创伤中幸存下来,以及看到儿子应对良好所产生的影响如何影响参与者的应对方式。此外,反思损伤如何改变了他们的生活在一定程度上帮助参与者理解创伤。研究结果结合相关现有文献进行讨论,以提供关于脊髓损伤如何影响他们所认为的父亲角色以及应对和适应创伤的挣扎的独特视角。有必要进行未来研究,调查脊髓损伤对家庭的影响,以更好地理解其更广泛的影响。