Stucki Gerold, Bickenbach Jerome
From the Department of Health Sciences and Health Policy, University of Lucerne, Lucerne, Switzerland; and Swiss Paraplegic Research, Nottwil, Switzerland.
Am J Phys Med Rehabil. 2017 Feb;96(2 Suppl 1):S55-S60. doi: 10.1097/PHM.0000000000000672.
The paper introduces the special issue by linking the International Spinal Cord Injury (InSCI) Community Survey study to the Learning Health System for SCI Initiative (LHS-SCI). The LHS-SCI was designed to respond to the implementation challenge of bringing about policy reform in light of the targeted policy recommendations of World Health Organization's International Perspectives on SCI report as well as the call for action of WHO's Global Disability Action Plan. The paper reviews the components of LHS-SCI relevant to internationally comparable information, a theory of change to guide for action, and the tools for evidence-informed policy. The interplay between persons, their health needs, and the societal response to those needs provides the foundation for the organization of the LHS-SCI Initiative. Moreover, as the other articles in this special issue describe in detail, the rationale, conceptualization, and study design of the InSCI study are also informed by the rationale, and mission, of the LHS for SCI Initiative. The LHS-SCI, and the implementation challenge that motivates it, is responsible for the design of the InSCI study and the overall mission of LHS-SCI to continuously improve the lived experience of people living with SCI around the world through an international evidence- and rights-informed research and policy reform effort.
本文通过将国际脊髓损伤（InSCI）社区调查研究与脊髓损伤学习健康系统倡议（LHS-SCI）相联系，介绍了这一特刊。LHS-SCI旨在应对实施挑战，根据世界卫生组织《脊髓损伤国际视角》报告的目标政策建议以及世界卫生组织《全球残疾行动计划》的行动呼吁进行政策改革。本文回顾了LHS-SCI中与国际可比信息、指导行动的变革理论以及循证政策工具相关的组成部分。个人、他们的健康需求以及社会对这些需求的反应之间的相互作用为LHS-SCI倡议的组织提供了基础。此外，正如本期特刊中的其他文章详细描述的那样，InSCI研究的基本原理、概念化和研究设计也受到LHS-SCI倡议的基本原理和使命的影响。LHS-SCI及其推动的实施挑战负责InSCI研究的设计以及LHS-SCI的总体使命，即通过国际循证和基于权利的研究与政策改革努力，不断改善全球脊髓损伤患者的生活体验。
