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将支持性护理原则融入透析决策:姑息医学提供者入门指南。

Integrating Supportive Care Principles Into Dialysis Decision Making: A Primer for Palliative Medicine Providers.

作者信息

Moss Alvin H

机构信息

Sections of Nephrology and Supportive Care, West Virginia University School of Medicine, Morgantown, West Virginia, USA.

出版信息

J Pain Symptom Manage. 2017 Mar;53(3):656-662.e1. doi: 10.1016/j.jpainsymman.2016.10.371. Epub 2017 Jan 6.

DOI:10.1016/j.jpainsymman.2016.10.371
PMID:28065700
Abstract

Despite advances in predialysis care and dialysis technology, patients with advanced chronic kidney disease and end-stage renal disease continue to experience multiple comorbidities, a high symptom burden, a shortened life expectancy, and substantial physical, emotional, and spiritual suffering. Patients with acute kidney injury and end-stage renal disease, especially if they are older, often undergo prolonged hospitalizations, greater use of intensive medical treatment, and limited survival. Unfortunately, most nephrologists are not trained to conduct shared decision-making conversations to elicit patients' values, preferences, and goals for treatment and address their patients' multifactorial suffering. These patients would benefit from the integration of supportive care principles into their care. This article addresses how supportive care specialists can collaborate with nephrology clinicians to provide patient-centered supportive care and identifies resources to assist them in this endeavor.

摘要

尽管在透析前护理和透析技术方面取得了进展,但晚期慢性肾病和终末期肾病患者仍存在多种合并症、高症状负担、预期寿命缩短以及严重的身体、情感和精神痛苦。急性肾损伤和终末期肾病患者,尤其是老年患者,往往住院时间延长、更多地使用强化医疗治疗且生存率有限。不幸的是,大多数肾病学家未接受过进行共同决策对话以了解患者的价值观、偏好和治疗目标并解决患者多因素痛苦的培训。这些患者将受益于将支持性护理原则融入其护理中。本文探讨了支持性护理专家如何与肾病临床医生合作以提供以患者为中心的支持性护理,并确定有助于他们开展这项工作的资源。

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Integrating Supportive Care Principles Into Dialysis Decision Making: A Primer for Palliative Medicine Providers.将支持性护理原则融入透析决策:姑息医学提供者入门指南。
J Pain Symptom Manage. 2017 Mar;53(3):656-662.e1. doi: 10.1016/j.jpainsymman.2016.10.371. Epub 2017 Jan 6.
2
Shared decision-making in end-stage renal disease: a protocol for a multi-center study of a communication intervention to improve end-of-life care for dialysis patients.终末期肾病中的共同决策:一项关于沟通干预的多中心研究方案,旨在改善透析患者的临终护理。
BMC Palliat Care. 2015 Jun 12;14:30. doi: 10.1186/s12904-015-0027-x.
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[Palliative care in nephrology].[肾脏病学中的姑息治疗]
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Kidney Supportive Care: Core Curriculum 2020.肾脏支持性护理:2020 年核心课程。
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The need for training in palliative care for physicians in other specialties: Brazilian nephrologists empowerment (or appropriation) on renal supportive care.其他专科医生对姑息治疗培训的需求:巴西肾脏病学家在肾脏支持治疗方面的能力提升(或自主掌握)
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Advance care plan barriers in older patients with end-stage renal disease: a qualitative nephrologist interview study.晚期肾病老年患者的预先医疗指示障碍:一项定性肾病学家访谈研究。
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Ten Tips Nephrologists Wish the Palliative Care Team Knew About Caring for Patients with Kidney Disease.肾内科医生希望缓和医疗团队了解的 10 个照顾肾脏病患者的要点。
J Palliat Med. 2018 Apr;21(4):546-551. doi: 10.1089/jpm.2018.0087.
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Improving end-of-life care for ESRD patients: an initiative for professionals.改善终末期肾病患者的临终关怀:面向专业人员的一项倡议。
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Libyan J Med. 2018 Dec;13(1):1490610. doi: 10.1080/19932820.2018.1490610.

引用本文的文献

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Urgent Dialysis as a Bridge to Palliative Care in Advanced Cancer Patients.紧急透析作为晚期癌症患者姑息治疗的桥梁
Indian J Nephrol. 2024 Nov-Dec;34(6):676. doi: 10.25259/IJN_243_2024. Epub 2024 Aug 1.
2
Perceptions and attitudes of kidney supportive care among elderly patients with advanced chronic kidney disease and dialysis healthcare professionals in China: a qualitative study.中国老年晚期慢性肾脏病和透析患者及透析医护人员对肾脏支持性护理的认知和态度:一项定性研究。
BMC Nephrol. 2023 Oct 26;24(1):316. doi: 10.1186/s12882-023-03372-2.
3
Decision aids to assist patients and professionals in choosing the right treatment for kidney failure.
帮助患者和专业人员选择合适的肾衰竭治疗方法的决策辅助工具。
Clin Kidney J. 2023 Sep 13;16(Suppl 1):i20-i38. doi: 10.1093/ckj/sfad172. eCollection 2023 Sep.
4
Factors affecting supportive needs in hemodialysis patients: A literature review.影响血液透析患者支持需求的因素:文献综述
J Family Med Prim Care. 2020 Apr 30;9(4):1844-1848. doi: 10.4103/jfmpc.jfmpc_984_19. eCollection 2020 Apr.
5
Palliation Versus Dialysis for End-Stage Renal Disease in the Oldest Old: What are the Considerations?高龄终末期肾病患者的姑息治疗与透析:需考虑哪些因素?
Palliat Care. 2017 Oct 9;10:1178224217735083. doi: 10.1177/1178224217735083. eCollection 2017.