1 Adelante, Centre of Expertise in Rehabilitation and Audiology, Hoensbroek, the Netherlands.
2 School for Mental Health and Neuroscience, Department of Psychiatry and Neuropsychology, Faculty of Health, Medicine and Life Sciences; Department of Neuropsychology and Psychopharmacology, Faculty of Psychology and Neuroscience, Maastricht University, Maastricht, the Netherlands.
Clin Rehabil. 2017 Sep;31(9):1267-1275. doi: 10.1177/0269215516686155. Epub 2017 Jan 9.
The purpose was to gain insight in the functioning of caregivers of cardiac arrest survivors at 12 months after a cardiac arrest. Secondly, the course of the wellbeing of the caregivers during the first year was studied. Finally, factors that are associated with a higher care burden at 12 months after the cardiac arrest were investigated.
A total of 195 family caregivers of cardiac arrest survivors were included.
Quality of life (SF-36, EuroQol-VAS), caregiver strain (CSI) and emotional functioning (HADS, IES) were measured at two weeks, three months and one year after the cardiac arrest. Thereby, the caregiver was asked to fill out the cognitive failure questionnaire (CFQ) to evaluate their view on the cognitive status of the patient.
Caregiver strain was high in 16 (15%) of the caregivers at 12 months. Anxiety was present in 33 (25%) caregivers and depression in 18 (14%) caregivers at 12 months. The repeated measures MANOVA showed that during the first year the following variables improved significantly: SF-36 domains social and mental health, role physical, role emotional and vitality, caregiver strain, HADS and IES ( P<0.001). At 12 months caregiver strain correlated significantly (explained variance 63%, P=0.03) with caregiver HADS ( P=0.01), EuroQol-VAS ( P=0.02), and the CFQ ( P<0.001), all measured at 12 months after the cardiac arrest.
Overall wellbeing of the caregivers improves during the first year up to normal levels, but caregivers with emotional problems or perceived cognitive problems at 12 months are at risk for developing a higher care burden.
了解心搏骤停幸存者的照料者在心搏骤停后 12 个月的功能状态。其次，研究了照料者在第一年的健康状况变化过程。最后，研究了与心搏骤停后 12 个月照料负担较高相关的因素。
共纳入 195 名心搏骤停幸存者的家属照料者。
在心搏骤停后两周、三个月和一年时，采用健康调查简表（SF-36）、欧洲五维健康量表（EuroQol-VAS）、照料者压力量表（CSI）和医院焦虑抑郁量表（HADS、IES）评估生活质量、照料者负担和情绪功能。同时，要求照料者填写认知失败问卷（CFQ）以评估他们对患者认知状况的看法。
12 个月时，16 名（15%）照料者存在较高的照料负担。33 名（25%）照料者存在焦虑，18 名（14%）照料者存在抑郁。重复测量方差分析显示，在第一年中，以下变量显著改善：SF-36 领域的社会和心理健康、躯体角色功能、情感角色功能和活力，照料者负担，HADS 和 IES（P<0.001）。12 个月时，照料者负担与 HADS（P=0.01）、EuroQol-VAS（P=0.02）和 CFQ（P<0.001）显著相关，这些变量均在心搏骤停后 12 个月测量。
照料者的整体健康状况在第一年中得到改善，达到了正常水平，但在 12 个月时存在情绪问题或感知认知问题的照料者可能面临更高的照料负担风险。
