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应对污名:探索脊髓损伤患者的身体形象体验与自我呈现

Managing the stigma: Exploring body image experiences and self-presentation among people with spinal cord injury.

作者信息

Bailey K Alysse, Gammage Kimberley L, van Ingen Cathy, Ditor David S

机构信息

Faculty of Applied Health Sciences, Brock University, Brock-Niagara Centre for Health and Well-Being.

Department of Kinesiology, Brock University and Brock-Niagara Centre for Health and Well-Being.

出版信息

Health Psychol Open. 2016 Jun 1;3(1):2055102916650094. doi: 10.1177/2055102916650094. eCollection 2016 Jan.

Abstract

Using modified constructivist grounded theory, the purpose of this study was to explore body image experiences in people with spinal cord injury. Nine participants (five women, four men) varying in age (21-63 years), type of injury (C3-T7; complete and incomplete), and years post-injury (4-36 years) took part in semi-structured in-depth interviews. The following main categories were found: appearance, weight concerns, negative functional features, impact of others, body disconnection, hygiene and incontinence, and self-presentation. Findings have implications for the health and well-being of those living with a spinal cord injury.

摘要

本研究采用改良的建构主义扎根理论,旨在探索脊髓损伤患者的身体意象体验。九名参与者(五名女性,四名男性)参与了半结构化深度访谈,他们在年龄(21 - 63岁)、损伤类型(C3 - T7;完全性和不完全性)以及受伤后年限(4 - 36年)方面存在差异。研究发现了以下主要类别:外貌、体重担忧、负面功能特征、他人的影响、身体脱节、卫生与失禁以及自我呈现。研究结果对脊髓损伤患者的健康和福祉具有启示意义。

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