门诊肌萎缩侧索硬化患者的参与限制：身体和心理因素。

Participation restrictions in ambulatory amyotrophic lateral sclerosis patients: Physical and psychological factors.

作者信息

Van Groenestijn Annerieke C, Schröder Carin D, Kruitwagen-Van Reenen Esther T, Van Den Berg Leonard H, Visser-Meily Johanna M A

机构信息

Center of Excellence in Rehabilitation Medicine, Brain Center Rudolf Magnus, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.

Department of Rehabilitation, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands.

出版信息

Muscle Nerve. 2017 Nov;56(5):912-918. doi: 10.1002/mus.25574. Epub 2017 Mar 26.

DOI:10.1002/mus.25574

PMID:28073181

Abstract

INTRODUCTION

The aim of this study was to assess the prevalence of participation restrictions in ambulatory patients with amyotrophic lateral sclerosis (ALS) and to identify physical and psychological contributory factors.

METHODS

In this cross-sectional study, self-reported participation restrictions of 72 ambulatory ALS patients were assessed using the social health status dimension (SIPSOC) of the Sickness Impact Profile (SIP-68). Associations between SIPSOC and physical functioning, psychological factors, and demographic factors were analyzed using hierarchical regression analyses.

RESULTS

Ninety-two percent of the patients reported participation restrictions; 54.9% could be explained by physical functioning; psychological factors accounted for 8.1% of the variance. Lung capacity, functional mobility, fatigue, and helplessness were independently associated with participation restrictions.

CONCLUSIONS

Ambulatory ALS patients have participation restrictions, which may be influenced if early ALS care is directed toward lung capacity, functional mobility, fatigue, and feelings of helplessness. Muscle Nerve 56: 912-918, 2017.

摘要