Department of Physical Therapy, The University of Alabama at Birmingham, Birmingham, AL, USA.
Department of Epidemiology and Department of Neurology, Johns Hopkins University, Baltimore, MD, USA.
Mult Scler. 2018 Mar;24(3):262-267. doi: 10.1177/1352458516687404. Epub 2017 Jan 12.
People with multiple sclerosis (MS) have identified "wellness" and associated behaviors as a high priority based on "social media listening" undertaken by the National MS Society (i.e. the Society).
The Society recently convened a group that consisted of researchers with experience in MS and wellness-related research, Society staff members, and an individual with MS for developing recommendations regarding a wellness research agenda.
The members of the group engaged in focal reviews and discussions involving the state of science within three approaches for promoting wellness in MS, namely diet, exercise, and emotional wellness.
That process informed a group-mediated activity for developing and prioritizing research goals for wellness in MS. This served as a background for articulating the mission and objectives of the Society's Wellness Research Working Group.
The primary mission of the Wellness Research Working Group is the provision of scientific evidence supporting the application of lifestyle, behavioral, and psychosocial approaches for promoting optimal health of mind, body, and spirit (i.e. wellness) in people with MS as well as managing the disease and its consequences.
多发性硬化症(MS)患者将“健康”和相关行为视为优先事项,这是基于国家多发性硬化症协会(即协会)进行的“社交媒体倾听”。
协会最近召集了一组由在 MS 和与健康相关的研究方面有经验的研究人员、协会工作人员和一位 MS 患者组成的人员,制定关于健康研究议程的建议。
小组成员参与了焦点审查和讨论,涉及促进 MS 健康的三种方法(即饮食、运动和情绪健康)中的科学现状。
该过程为制定和确定 MS 健康研究目标提供了小组介导的活动。这为阐明协会健康研究工作组的使命和目标提供了背景。
健康研究工作组的主要任务是提供科学证据,支持在多发性硬化症患者中应用生活方式、行为和心理社会方法来促进身心健康和精神(即健康),以及管理疾病及其后果。