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关爱以求知,求知以关爱。

Caring to Learn and Learning to Care.

作者信息

Cloyes Kristin G, Rosenkranz Susan J, Supiano Katherine P, Berry Patricia H, Routt Meghan, Llanque Sarah M, Shannon-Dorcy Kathleen

机构信息

1 University of Utah, Salt Lake City, UT, USA.

2 Oregon Health and Science University, Portland, OR, USA.

出版信息

J Correct Health Care. 2017 Jan;23(1):43-55. doi: 10.1177/1078345816684833.

DOI:10.1177/1078345816684833
PMID:28100141
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5484572/
Abstract

The increasing numbers of aging and chronically ill prisoners incarcerated in Western nations is well-documented, as is the growing need for prison-based palliative and end-of-life care. Less often discussed is specifically how end-of-life care can and should be provided, by whom, and with what resources. One strategy incorporates prisoner volunteers into end-of-life services within a peer-care program. This article reports on one such program based on focused ethnographic study including in-depth interviews with inmate hospice volunteers, nursing staff, and corrections officers working in the hospice program. We describe how inmate volunteers learn hospice care through formal education and training, supervised practice, guidance from more experienced inmates, and support from correctional staff. We discuss how emergent values of mentorship and stewardship are seen by volunteers and staff as integral to prison hospice sustainability and discuss implications of this volunteer-centric model for response-ability for the end-of-life care of prisoners.

摘要

西方国家被监禁的老年囚犯和慢性病囚犯人数不断增加,这已得到充分记录,对基于监狱的姑息治疗和临终关怀的需求也在日益增长。但较少被讨论的是临终关怀具体可以如何以及应该由谁提供,以及需要哪些资源。一种策略是将囚犯志愿者纳入同伴关怀项目的临终关怀服务中。本文报告了一项基于重点民族志研究的此类项目,该研究包括对临终关怀项目中的囚犯临终关怀志愿者、护理人员和惩教人员进行深入访谈。我们描述了囚犯志愿者如何通过正规教育和培训、监督实践、经验更丰富的囚犯的指导以及惩教人员的支持来学习临终关怀护理。我们讨论了志愿者和工作人员如何将指导和管理等新出现的价值观视为监狱临终关怀可持续性的核心,并讨论了这种以志愿者为中心的模式对囚犯临终关怀责任的影响。

相似文献

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Caring to Learn and Learning to Care.关爱以求知,求知以关爱。
J Correct Health Care. 2017 Jan;23(1):43-55. doi: 10.1177/1078345816684833.
2
Essential Elements of an Effective Prison Hospice Program.有效监狱临终关怀项目的基本要素。
Am J Hosp Palliat Care. 2016 May;33(4):390-402. doi: 10.1177/1049909115574491. Epub 2015 Mar 2.
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Palliative and end-of-life care in prisons: a content analysis of the literature.监狱中的姑息治疗与临终关怀:文献内容分析
Int J Prison Health. 2014;10(3):172-97. doi: 10.1108/IJPH-05-2013-0024.
4
The Louisiana State Penitentiary: Angola prison hospice.路易斯安那州立监狱:安哥拉监狱临终关怀院。
J Palliat Med. 2002 Aug;5(4):553-8. doi: 10.1089/109662102760269797.
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Louisiana State Penitentiary: A Textual Analysis of Correctional Staff Views on End-of-Life Care.路易斯安那州立监狱:惩教人员对临终关怀看法的文本分析。
J Correct Health Care. 2022 Aug;28(4):220-226. doi: 10.1089/jchc.20.09.0077. Epub 2022 May 31.
6
To be truly alive: motivation among prison inmate hospice volunteers and the transformative process of end-of-life peer care service.真正地活着:监狱临终关怀志愿者的动机与临终同伴关怀服务的转变过程。
Am J Hosp Palliat Care. 2014 Nov;31(7):735-48. doi: 10.1177/1049909113506035. Epub 2013 Sep 26.
7
Prison hospice and pastoral care services in California.加利福尼亚州的监狱临终关怀与牧师关怀服务。
J Palliat Med. 2002 Dec;5(6):903-8. doi: 10.1089/10966210260499096.
8
Palliative and end of life care in prisons: a mixed-methods rapid review of the literature from 2014-2018.监狱中的缓和医疗和临终关怀:2014-2018 年文献的混合方法快速综述。
BMJ Open. 2019 Dec 23;9(12):e033905. doi: 10.1136/bmjopen-2019-033905.
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Characteristics of Prison Hospice Patients: Medical History, Hospice Care, and End-of-Life Symptom Prevalence.监狱临终关怀患者的特征:病史、临终关怀及临终症状患病率
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Death and Dying in Carceral America: The Prison Hospice as an Inverted Space of Exception.美国监禁环境中的死亡与临终:监狱临终关怀作为一个倒置的例外空间。
Med Anthropol Q. 2022 Jun;36(2):177-197. doi: 10.1111/maq.12688. Epub 2022 Jan 30.

引用本文的文献

1
How do people in prison access palliative care? A scoping review of models of palliative care delivery for people in prison in high-income countries.监狱中的人如何获得姑息治疗?高收入国家中为监狱内人员提供姑息治疗模式的范围综述。
Palliat Med. 2024 May;38(5):517-534. doi: 10.1177/02692163241242647. Epub 2024 Apr 16.
2
Nursing services as perceived by inmates in correctional facilities in Jakarta, Indonesia: A qualitative study.印度尼西亚雅加达惩教设施中囚犯所感知的护理服务:一项定性研究。
Belitung Nurs J. 2023 Apr 18;9(2):184-191. doi: 10.33546/bnj.2485. eCollection 2023.
3
Caring, sharing, preparing and declaring: how do hospices support prisons to provide palliative and end of life care? A qualitative descriptive study using telephone interviews.关怀、分享、筹备与宣告:临终关怀机构如何支持监狱提供姑息治疗和临终关怀?一项采用电话访谈的质性描述性研究。
Palliat Med. 2021 Mar;35(3):563-573. doi: 10.1177/0269216320979194. Epub 2020 Dec 10.
4
Palliative and end of life care in prisons: a mixed-methods rapid review of the literature from 2014-2018.监狱中的缓和医疗和临终关怀:2014-2018 年文献的混合方法快速综述。
BMJ Open. 2019 Dec 23;9(12):e033905. doi: 10.1136/bmjopen-2019-033905.
5
A systematic integrative review of programmes addressing the social care needs of older prisoners.针对老年囚犯社会护理需求的项目的系统综合评价。
Health Justice. 2019 May 27;7(1):9. doi: 10.1186/s40352-019-0090-0.

本文引用的文献

1
Characteristics of Prison Hospice Patients: Medical History, Hospice Care, and End-of-Life Symptom Prevalence.监狱临终关怀患者的特征:病史、临终关怀及临终症状患病率
J Correct Health Care. 2015 Jul;21(3):298-308. doi: 10.1177/1078345815588842.
2
Palliative and end-of-life care in prisons: a content analysis of the literature.监狱中的姑息治疗与临终关怀:文献内容分析
Int J Prison Health. 2014;10(3):172-97. doi: 10.1108/IJPH-05-2013-0024.
3
Essential Elements of an Effective Prison Hospice Program.有效监狱临终关怀项目的基本要素。
Am J Hosp Palliat Care. 2016 May;33(4):390-402. doi: 10.1177/1049909115574491. Epub 2015 Mar 2.
4
The grief experience of prison inmate hospice volunteer caregivers.监狱临终关怀志愿者照料者的悲伤经历。
J Soc Work End Life Palliat Care. 2014;10(1):80-94. doi: 10.1080/15524256.2013.877866.
5
Care and companionship in an isolating environment: inmates attending to dying peers.在隔离环境中的关怀与陪伴:囚犯照顾濒死的同伴。
J Forensic Nurs. 2013 Jan-Mar;9(1):35-44. doi: 10.1097/JFN.0b013e31827a585c.
6
To be truly alive: motivation among prison inmate hospice volunteers and the transformative process of end-of-life peer care service.真正地活着:监狱临终关怀志愿者的动机与临终同伴关怀服务的转变过程。
Am J Hosp Palliat Care. 2014 Nov;31(7):735-48. doi: 10.1177/1049909113506035. Epub 2013 Sep 26.
7
The high cost of the international aging prisoner crisis: well-being as the common denominator for action.国际老龄化囚犯危机的高昂代价:福祉是行动的共同基础。
Gerontologist. 2013 Aug;53(4):543-54. doi: 10.1093/geront/gns125. Epub 2012 Oct 4.
8
Establishing hospice care for prison populations: An integrative review assessing the UK and USA perspective.为监狱人口建立临终关怀:评估英国和美国视角的综合回顾。
Palliat Med. 2012 Dec;26(8):969-78. doi: 10.1177/0269216311424219. Epub 2011 Oct 12.
9
End-of-life care and barriers for female inmates.女性囚犯的临终关怀与障碍
J Obstet Gynecol Neonatal Nurs. 2011 Jul-Aug;40(4):477-85. doi: 10.1111/j.1552-6909.2011.01260.x. Epub 2011 Jun 3.
10
When to say "yes" and when to say "no": boundary issues for hospice palliative care volunteers.何时说“是”,何时说“不”:临终关怀志愿者的界限问题。
Am J Hosp Palliat Care. 2011 Sep;28(6):429-34. doi: 10.1177/1049909110397926. Epub 2011 Feb 10.