Schouten Bojoura, Hellings Johan, Vankrunkelsven Patrick, Mebis Jeroen, Bulens Paul, Buntinx Frank, Vandijck Dominique, Van Hoof Elke
Faculty of Medicine and Life Sciences, Hasselt University, Hasselt, Belgium.
Faculty of Psychological and Educational Sciences, Free University of Brussels, Elsene, Belgium.
J Eval Clin Pract. 2017 Jun;23(3):599-607. doi: 10.1111/jep.12681. Epub 2017 Jan 23.
RATIONALE, AIMS, AND OBJECTIVES: The systematic assessment of cancer patients well-being and care needs is internationally recommended to optimize comprehensive cancer care. The Cancer Rehabilitation Evaluation System (CARES) is a psychometrically robust quality of life and needs assessment tool of US origin, developed in the early 1990s. This article describes Belgian patients' view on the content validity and feasibility of the CARES for use in current cancer care.
Participants were cancer patients recruited through media. Data were gathered in 4 focus groups (n = 26). The focus group discussions were facilitated with key questions. A moderator and an observer conducted and followed up the discussion. The audio file was transcribed verbatim and afterwards analyzed thematically.
Participants experience concerns and needs in a wide range of life domains such as physical, emotional, cognitive, social, relational, sexual, financial, and work-related and in the interaction with care professionals. According to participants, the items of the CARES are all relevant to capture the possible life disruption that cancer patients and survivors experience. One important theme is missing in the CARES, namely, the well-being of loved ones. The completion time of the CARES was judged to be feasible, and according to participants, only a few items need a reformulation.
In general, the results of this study support the content validity and feasibility of the CARES. However, little adjustments in formulation and a few extra items are needed. The instrument can be used to obtain a comprehensive assessment of a cancer patients' overall well-being and care needs to take dedicated action in care.
原理、目的和目标：国际上建议对癌症患者的幸福感和护理需求进行系统评估，以优化综合癌症护理。癌症康复评估系统（CARES）是一种源自美国的心理测量稳健的生活质量和需求评估工具，于20世纪90年代初开发。本文描述了比利时患者对CARES在当前癌症护理中使用的内容效度和可行性的看法。
参与者是通过媒体招募的癌症患者。在4个焦点小组（n = 26）中收集数据。通过关键问题促进焦点小组讨论。一名主持人和一名观察员主持并跟进讨论。音频文件逐字转录，然后进行主题分析。
参与者在身体、情感、认知、社会、人际关系、性、财务和工作相关等广泛的生活领域以及与护理专业人员的互动中都经历了担忧和需求。参与者认为，CARES的项目都与捕捉癌症患者和幸存者可能经历的生活干扰相关。CARES中缺少一个重要主题，即亲人的幸福感。CARES的完成时间被认为是可行的，并且参与者认为只有少数项目需要重新表述。
总体而言，本研究结果支持CARES的内容效度和可行性。然而，需要在表述上进行一些小调整并增加一些额外项目。该工具可用于全面评估癌症患者的整体幸福感和护理需求，以便在护理中采取专门行动。
