Centre for Dementia Studies, Brighton and Sussex Medical School, Brighton, UK.
School of Psychology, University of Kent, Canterbury, UK.
Alzheimers Dement. 2017 May;13(5):572-581. doi: 10.1016/j.jalz.2016.12.010. Epub 2017 Feb 5.
Family carers of people with dementia are their most important support in practical, personal, and economic terms. Carers are vital to maintaining the quality of life (QOL) of people with dementia. This review aims to identify factors related to the QOL of family carers of people with dementia.
Searches on terms including "carers," "dementia," "family," and "quality of life" in research databases. Findings were synthesized inductively, grouping factors associated with carer QOL into themes.
A total of 909 abstracts were identified. Following screening, lateral searches, and quality appraisal, 41 studies (n = 5539) were included for synthesis. A total of 10 themes were identified: demographics; carer-patient relationship; dementia characteristics; demands of caring; carer health; carer emotional well-being; support received; carer independence; carer self-efficacy; and future.
The quality and level of evidence supporting each theme varied. We need further research on what factors predict carer QOL in dementia and how to measure it.
痴呆症患者的家庭成员是其在实际、个人和经济方面最重要的支持。照顾者对于维持痴呆症患者的生活质量（QOL）至关重要。本综述旨在确定与痴呆症患者家庭成员的 QOL 相关的因素。
在研究数据库中搜索包括“照顾者”、“痴呆症”、“家庭”和“生活质量”等术语。通过归纳综合，将与照顾者 QOL 相关的因素分为主题。
共确定了 909 篇摘要。经过筛选、横向搜索和质量评估，纳入了 41 项研究（n=5539）进行综合分析。共确定了 10 个主题：人口统计学；照顾者-患者关系；痴呆症特征；照顾需求；照顾者健康；照顾者情绪健康；所获得的支持；照顾者独立性；照顾者自我效能感；以及未来。
每个主题的质量和证据水平都有所不同。我们需要进一步研究哪些因素可以预测痴呆症患者的照顾者 QOL，以及如何衡量它。
