Jönson Ring Ingrid, Nevéus Tryggve, Markström Agneta, Arnrup Kristina, Bazargani Farhan
Department of Orthodontics, Public Dental Service, Uppsala, Sweden.
Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Acta Paediatr. 2017 May;106(5):806-811. doi: 10.1111/apa.13787. Epub 2017 Mar 9.
There have not been any continence-specific measurement tools in Swedish that have allowed clinicians to investigate the quality of life (QoL) in children with bladder dysfunction. This study evaluated the QoL in Swedish children with nocturnal enuresis and tested the reliability of a Swedish translation of the Paediatric Incontinence Questionnaire (PinQ).
This prospective study comprised 46 children aged six to 18 years with nocturnal enuresis, who completed the PinQ after it was translated into Swedish. It was completed twice by 33 patients, and these responses were included in the test-retest evaluation.
The self-reported mean sum score for the whole group was 26.3 ± 13.37 (range: 5-58), and the most affected domains were social relations with peers and self-esteem. The highest individual scores were four, three or two for 71.7%, 17.4% and 10.9% of the study population, respectively. Cronbach's alpha was 0.87 for the whole questionnaire, indicating good internal consistency. The test-retest stability was excellent, with an intra-class correlation coefficient of 0.76.
Children with nocturnal enuresis had impaired self-esteem, and their impaired QoL affected their relationships with friends. The Swedish version of the PinQ proved to be a reliable tool that will be used in further studies.
瑞典尚无任何专门针对尿失禁的测量工具可让临床医生调查膀胱功能障碍儿童的生活质量（QoL）。本研究评估了瑞典夜间遗尿症儿童的生活质量，并测试了《小儿尿失禁问卷》（PinQ）瑞典语翻译版的可靠性。
这项前瞻性研究纳入了46名6至18岁的夜间遗尿症儿童，他们在PinQ翻译成瑞典语后完成了该问卷。33名患者完成了两次问卷填写，这些回答被纳入重测评估。
整个研究组自我报告的平均总分是26.3±13.37（范围：5 - 58），受影响最大的领域是与同龄人的社会关系和自尊。在研究人群中，分别有71.7%、17.4%和10.9%的个体得分最高为4分、3分或2分。整个问卷的Cronbach's α系数为0.87，表明内部一致性良好。重测稳定性极佳，组内相关系数为0.76。
夜间遗尿症儿童的自尊受损，其受损的生活质量影响了他们与朋友的关系。PinQ的瑞典语版本被证明是一种可靠的工具，将用于进一步的研究。
