Burhansstipanov Linda, Krebs Linda U, Harjo Lisa, Ragan Kathleen, Kaur Judith Salmon, Marsh Vickie, Painter Dewey
Native American Cancer Research Corporation (NACR), 3022 South Nova Road, Pine, CO, 80470-7830, USA.
Oncology Consultation, Education & Advocacy Network (OCEAN), 13323 W. Jewell Drive, Lakewood, CO, 80228-4221, USA.
J Cancer Educ. 2018 Jun;33(3):576-582. doi: 10.1007/s13187-016-1159-2.
Because of decreased access and dismal survival rates, strategies need to be developed to increase cancer awareness and facilitate cancer prevention, early detection, and screening activities within American Indian (AI) populations. The purpose of this study was to develop a locally tailored needs assessment to collect cancer prevention, control, and risk factor information and knowledge, attitude, and perceived behavior (hereafter referred to as "needs assessment") data from 500 community members living in 3 geographically diverse settings: the Southeastern USA, the Rocky Mountain region, and the Northern Plains. Needs assessment data helped identify local health priorities and create a pilot cancer prevention and early detection education intervention. There were two versions of common items of the instrument: short (~35 items) and long (55 items), and each partner added items that were recommended by their local AI Advisory Committee. Each partner collaborated with local AI organizations to identify and recruit participants at community venues. During the sessions, facilitators used Power Point® slides and ARS equipment and software to anonymously collect participants' responses. The partners collected needs assessment data from 677 community members over a 4-year period. Cancer education knowledge was low, barriers to accessing timely cancer screening and care services were excessive, tobacco use was excessive, and daily physical activity was insufficient for most participants. ARS was an effective way to collect needs assessment information. During discussions following the data collection, community members requested more cancer education opportunities, access to patient navigation services, and cultural competency training for healthcare providers.
由于获得医疗服务的机会减少以及生存率惨淡，需要制定策略以提高美国印第安人群体对癌症的认识，并促进癌症预防、早期检测及筛查活动。本研究的目的是开展一项因地制宜的需求评估，以收集来自生活在三个地理区域各异的地区（美国东南部、落基山地区和北部平原）的500名社区成员的癌症预防、控制及风险因素信息以及知识、态度和感知行为（以下简称“需求评估”）数据。需求评估数据有助于确定当地的卫生优先事项，并创建一项癌症预防和早期检测教育试点干预措施。该工具的通用项目有两个版本：简短版（约35项）和冗长版（55项），每个合作伙伴还添加了由其当地美国印第安咨询委员会推荐的项目。每个合作伙伴都与当地的美国印第安组织合作，在社区场所识别和招募参与者。在会议期间，主持人使用Power Point®幻灯片以及ARS设备和软件来匿名收集参与者的回答。合作伙伴在4年时间里从677名社区成员那里收集了需求评估数据。大多数参与者的癌症教育知识水平较低，获得及时癌症筛查和护理服务的障碍过多，烟草使用率过高，且日常身体活动不足。ARS是收集需求评估信息的有效方式。在数据收集后的讨论中，社区成员要求获得更多的癌症教育机会、患者导航服务以及针对医疗服务提供者的文化能力培训。
