Clark Jean, Raijmakers Natasja J H, Allan Simon, Zuylen Lia van, Heide Agnes van der
Clinical Nurse Specialist, Arohanui Hospice Palmerston, North New Zealand.
Post Doctoral Researcher, Comprehensive Cancer Organisation (IKNL), Utrecht, Netherlands.
Int J Palliat Nurs. 2017 Feb 2;23(2):74-82. doi: 10.12968/ijpn.2017.23.2.74.
Decreasing oral intake is common towards the end of life and a potential source of distress and concern for patients, relatives, whānau and clinicians. This paper provides insight to inform practice regarding clinicians' perceptions, practices, responses and communication with patients and their companions regarding declining oral intake towards the end of life.
In this qualitative study ten specialist palliative care staff participated in semi-structured interviews. Qualitative thematic analysis was used to analyse the data.
Three themes were identified: declining oral intake was a natural part of the dying process; responding empathetically; and clinicians described specific aims and ways regarding communication.
Insight into clinicians' endeavours to manage declining oral intake and support the wellbeing of patients, families, and whānau can inform practice. However the perspectives of family, whānau and health professionals continue to show significant variation regarding the communication given and received around declining oral intake towards the end of life.
临终前经口摄入量减少很常见，这是患者、亲属、毛利大家庭及临床医生苦恼和担忧的潜在来源。本文旨在深入探讨临床医生对于临终前经口摄入量减少的看法、做法、应对措施以及与患者及其陪伴者的沟通情况，为实践提供参考。
在这项定性研究中，十名专科姑息治疗工作人员参与了半结构化访谈。采用定性主题分析法对数据进行分析。
确定了三个主题：经口摄入量减少是死亡过程的自然组成部分；给予共情回应；临床医生描述了沟通的具体目标和方式。
深入了解临床医生为应对经口摄入量减少并支持患者、家庭和毛利大家庭福祉所做的努力，可为实践提供参考。然而，在临终前经口摄入量减少相关的沟通方面，家庭、毛利大家庭和健康专业人员的观点仍存在显著差异。
