Sellin Linda, Asp Margareta, Kumlin Tomas, Wallsten Tuula, Wiklund Gustin Lena
a School of Health, Care and Social Welfare , Mälardalen University , Västerås , Sweden.
b School of Health, Care and Social Welfare , Mälardalen University , Eskilstuna , Sweden.
Int J Qual Stud Health Well-being. 2017 Dec;12(1):1287985. doi: 10.1080/17482631.2017.1287985.
In today's health care, participation is acknowledged as important. However, there is limited research on how relatives of patients at risk of suicide experience their opportunities to participate in care during periods when their close ones are subject to inpatient care. The aim of this study was to describe the phenomenon of participation, as experienced by relatives of persons who are subject to inpatient psychiatric care due to a risk of suicide. The study was conducted through a reflective lifeworld research (RLR) approach, based on phenomenological philosophy. Eight relatives of patients receiving care from professionals in a psychiatric specialist health care context in Sweden participated in phenomenon-oriented interviews. Data were analysed to elucidate a meaning structure of the phenomenon. The findings show that the phenomenon of participation was more associated with patients' recovery processes than with the caring process, and means "being actively involved in a process in which the person regains the desire to live". The meaning of participation is further described by its meaning constituents: struggling for being able to be present for the person at risk of suicide, being able to share everyday life, and nurturing sources for vitality. These insights into the meaning of participation highlight the importance of allowing supportive relatives to be a part of the patient's life, while the person is cared for in an inpatient hospital setting. Thus, participation enables relatives to be acknowledged as resourceful human beings in the patient's recovery process, and thereby facilitates a sense of being able to manage and share life itself together with the person. This means that mental health nurses need to recognize individual variations of relatives' participation processes, and take on the responsibility of acknowledging relatives' lifeworlds.
在当今的医疗保健中，参与被认为是重要的。然而，关于有自杀风险患者的亲属在其亲人接受住院治疗期间如何体验参与护理的机会的研究却很有限。本研究的目的是描述因自杀风险而接受住院精神科护理的患者亲属所体验到的参与现象。该研究采用基于现象学哲学的反思性生活世界研究（RLR）方法进行。瑞典一家精神科专科医疗环境中接受专业人员护理的患者的八位亲属参与了以现象为导向的访谈。对数据进行分析以阐明该现象的意义结构。研究结果表明，参与现象与患者的康复过程而非护理过程更相关，其意味着“积极参与一个人重新获得生存欲望的过程”。参与的意义通过其意义构成要素进一步描述：努力能够陪伴有自杀风险的人，能够分享日常生活，以及培育活力源泉。这些对参与意义的见解凸显了在患者住院治疗期间允许支持性亲属成为患者生活一部分的重要性。因此，参与使亲属在患者的康复过程中被认可为有能力的人，从而促进一种能够与患者一起管理和分享生活本身的感觉。这意味着心理健康护士需要认识到亲属参与过程的个体差异，并承担起认可亲属生活世界的责任。
