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被照顾的经历:一位精神健康领域的经验专家的视角

Experiences of Being Cared-For: The Perspective of an Expert-by-Experience in Mental Health.

作者信息

Fox Joanna

机构信息

School of Education and Social Care, Anglia Ruskin University, Cambridge, United Kingdom.

出版信息

Front Psychiatry. 2022 Mar 10;13:824542. doi: 10.3389/fpsyt.2022.824542. eCollection 2022.

Abstract

It is difficult to understand what it feels like for people with mental ill-health to be cared-for and supported by family members; this experience is often little-explored. Narratives about caring have been increasingly written alongside first-person accounts of recovery, however, there is a dearth of literature written to gain the perspective of being cared-for because of mental distress. Thus, using autoethnography, I present three critical incidents occurring at different points in my recovery to enable exploration of experiences of being cared-for. Firstly, a critical incident at the point of acute unwellness is introduced, secondly an incident during a consultation with a health professional is highlighted, and finally a moment of transition when embarking on an independent life with my husband-to-be is described. I use autoethnography to connect "the autobiographical and personal to the cultural, social, and political". I consider how the identity of a carer is continually negotiated in a relationship with the service user in both the "private" and the "public" worlds during recovery. I reflect on how professionals can support both service users and carers in a triangle of care, by providing information and support, alongside promoting the development of independence and agency for the service user whilst in the caring relationship. Finally, I introduce a service model which promotes a family network approach to empower the service user, and highlight training programs on recovery that enable carers. I conclude by suggesting the potential of both approaches to support carers to promote the recovery of the service user.

摘要

很难理解患有精神疾病的人被家庭成员照顾和支持是怎样的感受;这种经历往往很少被探究。关于照顾的叙述越来越多地与康复的第一人称叙述一起出现,然而,缺乏从因精神困扰而被照顾的角度撰写的文献。因此,我运用自我民族志,呈现了在我康复过程中不同阶段发生的三个关键事件,以探讨被照顾的经历。首先,介绍了在急性不适阶段的一个关键事件,其次突出了与健康专业人员咨询期间的一个事件,最后描述了与未婚夫开始独立生活时的一个过渡时刻。我运用自我民族志将“自传性和个人性与文化、社会和政治性”联系起来。我思考在康复过程中,照顾者的身份如何在“私人”和“公共”世界中与服务使用者的关系中不断协商。我反思专业人员如何通过提供信息和支持,在照顾三角关系中同时支持服务使用者和照顾者,同时在照顾关系中促进服务使用者的独立性和自主性发展。最后,我介绍了一种促进家庭网络方法以增强服务使用者能力的服务模式,并强调了使照顾者能够参与的康复培训项目。我在结论中指出这两种方法在支持照顾者促进服务使用者康复方面的潜力。

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