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Lived Experiences of Psychosis: Understanding the Gap Between Perception and Reality.精神病的生活体验:理解感知与现实之间的差距
Schizophr Bull. 2021 Oct 21;47(6):1515-1517. doi: 10.1093/schbul/sbab065.
2
An unexpected visitor and a sword play: a randomized controlled trial of collective narrative therapy groups for primary carers of people with schizophrenia.一位不速之客与一场剑术表演:针对精神分裂症患者主要照料者的集体叙事治疗小组的随机对照试验。
J Ment Health. 2023 Feb;32(1):351-362. doi: 10.1080/09638237.2020.1793123. Epub 2020 Jul 15.
3
Interventions for Family Members and Carers of Patients with Borderline Personality Disorder: A Systematic Review.边缘型人格障碍患者家庭成员及照料者的干预措施:一项系统综述
Fam Process. 2021 Mar;60(1):134-144. doi: 10.1111/famp.12537. Epub 2020 Apr 17.
4
"Keeping Control": A user-led exploratory study of mental health service user experiences of targeted violence and abuse in the context of adult safeguarding in England.《保持控制》:一项由用户主导的探索性研究,探讨了英格兰成人保护背景下心理健康服务使用者遭受针对性暴力和虐待的经历。
Health Soc Care Community. 2019 Sep;27(5):e781-e792. doi: 10.1111/hsc.12806. Epub 2019 Jun 30.
5
To be present, share and nurture: a lifeworld phenomenological study of relatives' participation in the suicidal person's recovery.在场、分享与培育:一项关于亲属参与自杀者康复过程的生活世界现象学研究
Int J Qual Stud Health Well-being. 2017 Dec;12(1):1287985. doi: 10.1080/17482631.2017.1287985.
6
Interventions to improve the experience of caring for people with severe mental illness: systematic review and meta-analysis.改善严重精神疾病患者护理体验的干预措施:系统评价和荟萃分析。
Br J Psychiatry. 2015 Apr;206(4):268-74. doi: 10.1192/bjp.bp.114.147561.
7
Strengths model case management fidelity scores and client outcomes.优势模型案例管理保真度评分和客户结果。
Psychiatr Serv. 2012 Jul;63(7):708-10. doi: 10.1176/appi.ps.201100373.
8
Conceptual framework for personal recovery in mental health: systematic review and narrative synthesis.心理健康中个人康复的概念框架:系统评价和叙述性综合。
Br J Psychiatry. 2011 Dec;199(6):445-52. doi: 10.1192/bjp.bp.110.083733.
9
Caregiver experience in mental illness: a perspective from a rural community in South Africa.精神疾病中的照顾者经历:来自南非一个农村社区的视角
Int J Ment Health Nurs. 2009 Oct;18(5):357-67. doi: 10.1111/j.1447-0349.2009.00624.x.
10
'I'm not an outsider, I'm his mother!' A phenomenological enquiry into carer experiences of exclusion from acute psychiatric settings.“我不是外人,我是他的母亲!” 一项关于照顾者在急性精神科环境中被排斥经历的现象学探究。
Int J Ment Health Nurs. 2008 Dec;17(6):392-401. doi: 10.1111/j.1447-0349.2008.00574.x.

被照顾的经历:一位精神健康领域的经验专家的视角

Experiences of Being Cared-For: The Perspective of an Expert-by-Experience in Mental Health.

作者信息

Fox Joanna

机构信息

School of Education and Social Care, Anglia Ruskin University, Cambridge, United Kingdom.

出版信息

Front Psychiatry. 2022 Mar 10;13:824542. doi: 10.3389/fpsyt.2022.824542. eCollection 2022.

DOI:10.3389/fpsyt.2022.824542
PMID:35356715
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8960045/
Abstract

It is difficult to understand what it feels like for people with mental ill-health to be cared-for and supported by family members; this experience is often little-explored. Narratives about caring have been increasingly written alongside first-person accounts of recovery, however, there is a dearth of literature written to gain the perspective of being cared-for because of mental distress. Thus, using autoethnography, I present three critical incidents occurring at different points in my recovery to enable exploration of experiences of being cared-for. Firstly, a critical incident at the point of acute unwellness is introduced, secondly an incident during a consultation with a health professional is highlighted, and finally a moment of transition when embarking on an independent life with my husband-to-be is described. I use autoethnography to connect "the autobiographical and personal to the cultural, social, and political". I consider how the identity of a carer is continually negotiated in a relationship with the service user in both the "private" and the "public" worlds during recovery. I reflect on how professionals can support both service users and carers in a triangle of care, by providing information and support, alongside promoting the development of independence and agency for the service user whilst in the caring relationship. Finally, I introduce a service model which promotes a family network approach to empower the service user, and highlight training programs on recovery that enable carers. I conclude by suggesting the potential of both approaches to support carers to promote the recovery of the service user.

摘要

很难理解患有精神疾病的人被家庭成员照顾和支持是怎样的感受;这种经历往往很少被探究。关于照顾的叙述越来越多地与康复的第一人称叙述一起出现,然而,缺乏从因精神困扰而被照顾的角度撰写的文献。因此,我运用自我民族志,呈现了在我康复过程中不同阶段发生的三个关键事件,以探讨被照顾的经历。首先,介绍了在急性不适阶段的一个关键事件,其次突出了与健康专业人员咨询期间的一个事件,最后描述了与未婚夫开始独立生活时的一个过渡时刻。我运用自我民族志将“自传性和个人性与文化、社会和政治性”联系起来。我思考在康复过程中,照顾者的身份如何在“私人”和“公共”世界中与服务使用者的关系中不断协商。我反思专业人员如何通过提供信息和支持,在照顾三角关系中同时支持服务使用者和照顾者,同时在照顾关系中促进服务使用者的独立性和自主性发展。最后,我介绍了一种促进家庭网络方法以增强服务使用者能力的服务模式,并强调了使照顾者能够参与的康复培训项目。我在结论中指出这两种方法在支持照顾者促进服务使用者康复方面的潜力。