Wittenberg Elaine, Borneman Tami, Koczywas Marianna, Del Ferraro Catherine, Ferrell Betty
City of Hope Comprehensive Cancer Center, 1500 E. Duarte Road, Duarte, CA 91010, USA.
Behav Sci (Basel). 2017 Mar 2;7(1):12. doi: 10.3390/bs7010012.
Family caregivers have enormous communication responsibilities tied to caregiving, such as sharing the patient's medical history with providers, relaying diagnosis and prognosis to other family members, and making decisions about care with the patient. While caregiver stress and burden has been widely documented in the caregiving literature, little is known about how communication burden, real or perceived communication challenges, impacts caregiver quality of life. In family caregiving, the City of Hope (COH) Quality of Life model proposes that the caregiving experience is reciprocal to the patient experience, impacting physical, social, psychological, and spiritual quality of life. We used data from a pilot study testing a communication coaching call intervention with family caregivers of lung cancer patients to analyze caregiver reported communication burden and quality of life. We found variances in each quality of life domain, suggesting that caregiver interventions should range from self-care skill building for physical care to psycho-educational interventions that support caregiver coping and communication skill building. These findings demonstrate the importance of caregiver assessment and attention to communication burden in quality cancer care.
家庭护理人员肩负着与护理相关的巨大沟通责任，比如与医护人员分享患者的病史、向其他家庭成员传达诊断结果和预后情况，以及与患者共同做出护理决策。虽然护理人员的压力和负担在护理文献中已有广泛记载，但对于沟通负担，即实际存在的或感知到的沟通挑战，如何影响护理人员的生活质量却知之甚少。在家庭护理中，希望之城（COH）生活质量模型提出，护理体验与患者体验是相互的，会影响身体、社会、心理和精神生活质量。我们使用了一项试点研究的数据，该研究对肺癌患者的家庭护理人员进行了沟通指导电话干预测试，以分析护理人员报告的沟通负担和生活质量。我们发现每个生活质量领域都存在差异，这表明护理人员干预措施应涵盖从身体护理的自我护理技能培养到支持护理人员应对和沟通技能培养的心理教育干预等方面。这些发现证明了在优质癌症护理中评估护理人员以及关注沟通负担的重要性。
