肺癌患者的痛苦家属照护者：心理社会和实际挑战的考察。
Distressed family caregivers of lung cancer patients: an examination of psychosocial and practical challenges.
机构信息
Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, 641 Lexington Avenue, New York, NY 10022, USA.
出版信息
Support Care Cancer. 2013 Feb;21(2):431-7. doi: 10.1007/s00520-012-1532-6. Epub 2012 Jul 14.
PURPOSE
Lung cancer and its treatment impose many demands on family caregivers, which may increase their risk for distress. However, little research has documented aspects of the caregiving experience that are especially challenging for distressed caregivers of lung cancer patients. This study aimed to explore caregivers' key challenges in coping with their family member's lung cancer.
METHODS
Single, semi-structured qualitative interviews were conducted with 21 distressed family caregivers of lung cancer patients.
RESULTS
Caregivers described three key challenges in coping with their family member's lung cancer. The most common challenge, identified by 38 % of caregivers, was a profound sense of uncertainty regarding the future as they attempted to understand the patient's prognosis and potential for functional decline. Another key challenge, identified by 33 % of caregivers, involved time-consuming efforts to manage the patient's emotional reactions to the illness. Other caregivers (14 %) characterized practical tasks, such as coordinating the patient's medical care, as their greatest challenge.
CONCLUSIONS
Results suggest that clinical efforts are needed to assist distressed caregivers in providing practical and emotional support to the patient and attending to their own emotional needs.
目的
肺癌及其治疗给家庭照顾者带来了诸多需求，这可能会增加他们的痛苦风险。然而，很少有研究记录了对肺癌患者的痛苦照顾者来说特别具有挑战性的照顾体验方面。本研究旨在探讨照顾者在应对家庭成员肺癌时的主要挑战。
方法
对 21 名患有肺癌的痛苦家庭照顾者进行了单次、半结构化的定性访谈。
结果
照顾者描述了应对家庭成员肺癌的三个主要挑战。38%的照顾者认为，对未来的一种深深的不确定性是最常见的挑战，因为他们试图了解患者的预后和功能下降的可能性。另一个主要挑战涉及管理患者对疾病的情绪反应，这是 33%的照顾者所面临的。其他照顾者（14%）将协调患者的医疗护理等实际任务描述为他们最大的挑战。
结论
结果表明，需要临床努力来帮助痛苦的照顾者为患者提供实际和情感支持，并关注他们自己的情感需求。
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