Mader Luzius, Roser Katharina, Baenziger Julia, Tinner Eva Maria, Scheinemann Katrin, Kuehni Claudia Elisabeth, Michel Gisela
Department of Health Sciences and Health Policy, University of Lucerne, Lucerne, Switzerland.
Division of Pediatric Hematology/Oncology, Department of Pediatrics, University of Bern, Bern, Switzerland.
Pediatr Blood Cancer. 2017 Aug;64(8). doi: 10.1002/pbc.26456. Epub 2017 Mar 6.
Taking care of children diagnosed with cancer affects parents' professional life and may place the family at risk-of-poverty. We aimed to (i) compare the household income and risk-of-poverty of parents of childhood cancer survivors (CCS) to parents of the general population, and (ii) identify sociodemographic and cancer-related factors associated with risk-of-poverty.
As part of the Swiss Childhood Cancer Survivor Study, we sent a questionnaire to parents of CCS aged 5-15 years, who survived ≥5 years after diagnosis. Information on parents of the general population came from the Swiss Household Panel (parents with ≥1 child aged 5-15 years). Risk-of-poverty was defined as having a monthly household income of <4,500 Swiss Francs (CHF) for single parents and <6,000 CHF for parent-couples. We used logistic regression to identify factors associated with risk-of-poverty.
We included parents of 383 CCS and 769 control parent households. Parent-couples of CCS had a lower household income (P < 0.001) and were at higher risk-of-poverty (30.4% vs. 19.3%, P = 0.001) compared to control parent-couples. Household income and risk-of-poverty of single parents of CCS was similar to control single parents. Parents of CCS were at higher risk-of-poverty if they had only standard education (OR = 3.77 [where OR is odds ratio], confidence interval [CI]: 1.61-8.82; OR = 8.59, CI: 4.16-17.72) and were from the German language region (OR = 1.99, CI: 1.13-3.50). We found no cancer-related risk factors.
Parents of long-term CCS reported lower household income and higher risk-of-poverty than control parents. Support strategies may be developed to mitigate parents' risk-of-poverty in the long term, particularly among parents with lower education.
照顾被诊断患有癌症的儿童会影响父母的职业生活,并可能使家庭面临贫困风险。我们旨在:(i)比较儿童癌症幸存者(CCS)的父母与一般人群的父母的家庭收入和贫困风险;(ii)确定与贫困风险相关的社会人口学和癌症相关因素。
作为瑞士儿童癌症幸存者研究的一部分,我们向年龄在5至15岁、诊断后存活≥5年的CCS的父母发送了一份问卷。一般人群父母的信息来自瑞士家庭小组(有≥1名5至15岁子女的父母)。贫困风险定义为单亲家庭月家庭收入<4500瑞士法郎(CHF),双亲家庭月家庭收入<6000瑞士法郎。我们使用逻辑回归来确定与贫困风险相关的因素。
我们纳入了383名CCS的父母和769个对照父母家庭。与对照双亲家庭相比,CCS的双亲家庭收入较低(P<0.001),贫困风险较高(30.4%对19.3%,P = 0.001)。CCS单亲家庭的家庭收入和贫困风险与对照单亲家庭相似。CCS的父母如果只有标准教育水平(比值比[OR]=3.77[OR为比值比],置信区间[CI]:1.61 - 8.82;OR = 8.59,CI:4.16 - 17.72)且来自德语区(OR = 1.99,CI:1.13 - 3.50),则贫困风险较高。我们未发现与癌症相关的风险因素。
长期CCS的父母报告的家庭收入低于对照父母,贫困风险高于对照父母。可以制定支持策略以长期减轻父母的贫困风险,特别是在教育程度较低的父母中。