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父母对癌症患儿的社会支持的接受和提供在调整中的作用。

Social Support Received and Provided in the Adjustment of Parents of Children With Cancer.

机构信息

University of Málaga, Málaga, Andalusia, Spain.

出版信息

Integr Cancer Ther. 2021 Jan-Dec;20:15347354211044089. doi: 10.1177/15347354211044089.

DOI:10.1177/15347354211044089
PMID:34583552
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8485259/
Abstract

OBJECTIVE

The aim of the present study is to determine the relation between the satisfaction of parents of children with cancer with the social support received and provided from a multidimensional perspective (sources and types of support) and the disruptions that take place in different areas of their lives (partner, children, family, social relations, and economic and employment situation).

METHOD

One hundred twelve parents of children diagnosed with cancer who received treatment at the Mother and Child Hospital of Málaga (Spain) were recruited. Data were gathered through self-reporting measures. The instrument used includes a questionnaire about socio-demographic variables, a questionnaire about parents' adjustment to the situation and a questionnaire about social support received and provided based on the different sources and types of support.

RESULTS

There is a negative and significant relation between satisfaction with support received and provided and the magnitude of disruptions in parents' lives.

CONCLUSION

Satisfaction with emotional support received from the partner and family, and support provided to these sources, relate to lower disruption in different areas of parents' lives. These results can have significant practical implications for the psychosocial care provided to parents of children with cancer.

摘要

目的

本研究旨在从多维视角(支持来源和类型)确定癌症患儿父母对其获得的和提供的社会支持的满意度与生活各方面的中断(包括伴侣、孩子、家庭、社会关系以及经济和就业状况)之间的关系。

方法

招募了 112 名在西班牙马拉加母婴医院接受治疗的癌症患儿的父母。通过自我报告措施收集数据。使用的工具包括一份关于社会人口统计学变量的问卷、一份关于父母对情况的调整的问卷以及一份关于基于不同来源和类型的支持获得和提供的社会支持的问卷。

结果

获得和提供的支持的满意度与父母生活中断的程度呈负相关且显著。

结论

对来自伴侣和家庭的情感支持的满意度以及对这些来源的支持与父母生活的不同领域中断程度较低有关。这些结果对为癌症患儿的父母提供的社会心理关怀具有重要的实际意义。

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Psychological treatment for family members of children with cancer: A systematic review and meta-analysis.癌症患儿家属的心理干预治疗:系统评价和荟萃分析。
Psychooncology. 2019 May;28(5):960-969. doi: 10.1002/pon.5052. Epub 2019 Mar 18.
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Perceptions of changes in clinical, informational, and supportive relationships after end of treatment among parents of young childhood cancer survivors.治疗结束后儿童期癌症幸存者父母对临床、信息和支持性关系变化的感知。
Psychooncology. 2019 Apr;28(4):913-919. doi: 10.1002/pon.5042. Epub 2019 Mar 14.
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Predictors of quality of life and depression among Korean-American cancer patients and their family caregivers.韩裔美国癌症患者及其家庭照顾者的生活质量和抑郁预测因素。
Psychooncology. 2018 Dec;27(12):2717-2724. doi: 10.1002/pon.4864. Epub 2018 Sep 13.
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Surviving childhood cancer: a systematic review of studies on risk and determinants of adverse socioeconomic outcomes.儿童癌症存活者:不良社会经济结局风险和决定因素的研究系统评价。
Int J Cancer. 2019 Apr 15;144(8):1796-1823. doi: 10.1002/ijc.31789. Epub 2018 Oct 30.
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Family rituals when children have cancer: A qualitative study.当孩子患有癌症时的家庭仪式:一项定性研究。
J Fam Psychol. 2018 Aug;32(5):643-653. doi: 10.1037/fam0000419. Epub 2018 Jul 12.
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Pediatr Blood Cancer. 2017 Aug;64(8). doi: 10.1002/pbc.26456. Epub 2017 Mar 6.