Inhestern Laura, Beierlein Volker, Krauth Konstantin A, Schulte Thomas, Berger Dieter, Koch Uwe, Bergelt Corinna
Institut für Medizinische Psychologie Universitätsklinikum Hamburg-Eppendorf Martinistraße 52 D-20246 Hamburg Deutschland Institut für Medizinische Psychologie am Universitätsklinikum Hamburg-Eppendorf.
Rehabilitationsklinik Bad Oexen Oexen 27 32549 Bad Oeynhausen Deutschland Rehabilitationsklinik Bad Oexen.
Prax Kinderpsychol Kinderpsychiatr. 2017 Mar;66(3):194-208. doi: 10.13109/prkk.2017.66.3.194.
Burden and Rehabilitation Goals of Families in Pediatric-oncological Rehabilitation Survival rates of childhood cancer patients increased during the past years up to 80 %. Therefore, pediatric oncological rehabilitation is essential for reintegrating children with cancer into normal life. We performed an analysis of the current state in pediatric oncological rehabilitation with regards to the impairments of the participants and results in rehabilitation. Descriptive and content analyses of 422 medical discharge summaries were conducted. 55 % of the pediatric patients are male; the average age is 8.7 years. Children attending rehabilitation program are affected by various functional and psychosocial impairments. We identified global rehabilitation-goals such as integration in peer group and specific goals such as pain relief. According to rehabilitation physicians' opinion most patients achieve their rehabilitation-goals. Accompanying family members report a range of psychosocial burden and diverse concerns for rehabilitation. Medical discharge summaries display the complexity of family-oriented rehabilitation. We conclude that rehabilitation treatment needs to be tailored according to individual burdens and the whole family.
儿科肿瘤康复中家庭的负担与康复目标 过去几年间，儿童癌症患者的生存率提高到了80%。因此，儿科肿瘤康复对于让患癌儿童重新融入正常生活至关重要。我们针对参与者的功能障碍及康复结果，对儿科肿瘤康复的现状进行了分析。我们对422份医疗出院小结进行了描述性分析和内容分析。55%的儿科患者为男性，平均年龄为8.7岁。参加康复项目的儿童受到各种功能和心理社会障碍的影响。我们确定了融入同龄人群体等总体康复目标以及缓解疼痛等具体目标。根据康复医生的意见，大多数患者实现了他们的康复目标。陪同的家庭成员报告了一系列心理社会负担以及对康复的各种担忧。医疗出院小结显示了以家庭为导向的康复的复杂性。我们得出结论，康复治疗需要根据个体负担和整个家庭进行调整。
