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主观照料负担与照料者满意度:伴侣关系质量与互惠性的作用

Subjective Caregiver Burden and Caregiver Satisfaction: The Role of Partner Relationship Quality and Reciprocity.

作者信息

Tough Hannah, Brinkhof Martin W, Siegrist Johannes, Fekete Christine

机构信息

Swiss Paraplegic Research, Nottwil, Switzerland; Department of Health Sciences and Health Policy, University of Lucerne, Lucerne, Switzerland.

Work Stress Research, Faculty of Medicine, University of Düsseldorf, Life-Science-Center, Düsseldorf, Germany.

出版信息

Arch Phys Med Rehabil. 2017 Oct;98(10):2042-2051. doi: 10.1016/j.apmr.2017.02.009. Epub 2017 Mar 9.

Abstract

OBJECTIVE

To explore the effect of relationship quality and reciprocity in partnerships on subjective caregiver burden and caregiver satisfaction in partners of persons with a severe physical disability (spinal cord injury).

DESIGN

Cross-sectional, observational.

SETTING

Community setting.

PARTICIPANTS

Caregiving partners of persons with spinal cord injury (N=118).

INTERVENTIONS

Not applicable.

MAIN OUTCOME MEASURES

Subjective caregiver burden measured by the Zarit Burden Interview (short form) and caregiver satisfaction measured by a single item on feelings of satisfaction resulting from the caregiver role.

RESULTS

Caregiving partners who rated their relationship quality as high encountered less subjective caregiver burden (β=-1.10; 95% confidence interval [CI], -1.47 to -0.72; P<.001) and more caregiver satisfaction (odds ratio [OR], 1.18; 95% CI, 1.01-1.45; P=.049). These associations persisted even after controlling for sociodemographic characteristics, lesion severity of the care receiver, and objective caregiver burden. Partners who indicated high reciprocity in their relationship to the care receiver indicated less subjective caregiver burden and more caregiver satisfaction when relationship quality was excluded from the final models; however, the effect of reciprocity on subjective burden (β=-.38; 95% CI, -3.71 to 2.95; P=.82) and caregiver satisfaction (OR, 1.21; 95% CI, 0.28-5.22; P=.80) disappeared when including relationship quality.

CONCLUSIONS

Results highlight the importance of relationship quality as a target for couple interventions aimed at reducing subjective caregiver burden and increasing satisfaction in the caregiving role.

摘要

目的

探讨重度身体残疾(脊髓损伤)患者伴侣关系中的关系质量和互惠性对主观照料负担及照料者满意度的影响。

设计

横断面观察性研究。

地点

社区环境。

参与者

脊髓损伤患者的照料伴侣(N = 118)。

干预措施

不适用。

主要观察指标

采用 Zarit 负担访谈简表测量主观照料负担,用一项关于照料者角色满意度的单项指标测量照料者满意度。

结果

将关系质量评为高的照料伴侣主观照料负担较轻(β = -1.10;95%置信区间[CI],-1.47至-0.72;P <.001),照料者满意度较高(比值比[OR],1.18;95% CI,1.01 - 1.45;P =.049)。即使在控制了社会人口学特征、受照料者的损伤严重程度和客观照料负担后,这些关联依然存在。在最终模型中排除关系质量后,那些表示与受照料者关系中互惠性高的伴侣主观照料负担较轻,照料者满意度较高;然而,当纳入关系质量时,互惠性对主观负担(β = -.38;95% CI,-3.71至2.95;P =.82)和照料者满意度(OR,1.21;95% CI,0.28 - 5.22;P =.80)的影响消失。

结论

结果凸显了关系质量作为夫妻干预目标的重要性,旨在减轻主观照料负担并提高照料角色的满意度。

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