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对患有严重精神疾病的人使用自我报告测量方法的挑战:四名参与者的研究过程经历

The Challenges of Using Self-Report Measures with People with Severe Mental Illness: Four Participants' Experiences of the Research Process.

作者信息

Bibb Jennifer, McFerran Katrina Skewes

机构信息

National Music Therapy Research Unit, Melbourne Conservatorium of Music, University of Melbourne, Building 862, 234 St Kilda Road, Southbank, 3006, Victoria, Australia.

出版信息

Community Ment Health J. 2017 Aug;53(6):747-754. doi: 10.1007/s10597-017-0127-6. Epub 2017 Mar 14.

Abstract

This study aimed to explore four mental health consumers' experiences of completing self-report outcome measures in a research project. Participants were recruited from a community mental health organisation in Melbourne and were interviewed upon completion of a mixed methods research study where they were asked to complete a series of self-report outcome measures. Descriptive phenomenological micro-analysis was used to analyse interview data and is presented along with the researchers' observations during the data collection process. Results revealed that participants found the outcome measures cognitively challenging and the language used in the measures did not support the empowering intentions of mental health recovery. The authors suggest that the value of completing surveys for people with severe mental illness needs to be carefully considered so that the research process does not diminish other benefits of participation.

摘要

本研究旨在探索四名心理健康服务使用者在一个研究项目中完成自我报告结果测量的经历。参与者从墨尔本的一个社区心理健康组织招募,在一项混合方法研究完成后接受访谈,在该研究中他们被要求完成一系列自我报告结果测量。采用描述性现象学微观分析来分析访谈数据,并呈现研究人员在数据收集过程中的观察结果。结果显示,参与者发现结果测量在认知上具有挑战性,且测量中使用的语言并不支持心理健康康复的赋权意图。作者建议,需要仔细考虑为重度精神疾病患者完成调查的价值,以便研究过程不会减少参与的其他益处。

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