Imafidon Elvis
Ambrose Alli University, P.M.B. 14, Ekpoma, Edo State, Nigeria.
Theor Med Bioeth. 2017 Apr;38(2):163-177. doi: 10.1007/s11017-017-9403-2.
Albinism is a global public health issue but it assumes a peculiar nature in the African continent due, in part, to the social stigma faced by persons with albinism (PWAs) in Africa. I argue that there are two essential reasons for this precarious situation. First, in the African consciousness, albinism is an alterity or otherness. The PWA in Africa is not merely a physical other but also an ontological other in the African community of beings, which provides a hermeneutic for the stigmatising separateness or difference of the PWA. The second reason hinges on a distinction drawn by Jürgen Habermas between the ethical point of view and the moral point of view. While the former consists of the ethos, customs, or idea of the good shared by a group of persons with a shared tradition or way of life, the latter consists of what is good for all and transcends particular traditions or ways of life. Consequently, the African ethical point of view, the ethics of solidarity, justifies within the African worldview the established alterity and, by implication, stigmatization of PWAs. On this view, actions that promote harmony and prevent discord and disequilibrium among accepted beings in the African community are permissible. I further show that unless there is a change in the physical and ontological conception of PWAs and a leap from the ethical point of view to the moral point of view, the negative attitudes toward PWAs will not change. The leap to the moral point of view does not suggest an abandonment of the ethical point of view but only recommends that the two meet halfway in respect for universally accepted norms of human actions. To achieve this, I will show that much needs to be done in the areas of policy formulation, law, health care services, and education.
白化病是一个全球性的公共卫生问题,但在非洲大陆却呈现出一种特殊的性质,部分原因是非洲白化病患者(PWAs)面临着社会耻辱。我认为造成这种不稳定状况有两个根本原因。首先,在非洲人的意识中,白化病是一种异类或他者。非洲的白化病患者不仅在身体上与众不同,在非洲的生物群落中也是一种本体论上的他者,这为白化病患者被污名化的分离或差异提供了一种解释。第二个原因取决于尤尔根·哈贝马斯对伦理观点和道德观点所做的区分。前者由一群具有共同传统或生活方式的人所共享的精神气质、习俗或善的观念组成,而后者则包括对所有人都有益且超越特定传统或生活方式的东西。因此,非洲的伦理观点,即团结伦理,在非洲世界观中为既定的他者性以及对白化病患者的污名化提供了正当理由。按照这种观点,在非洲社区中,促进被认可的生物之间的和谐、防止不和谐与失衡的行为是被允许的。我进一步表明,除非对白化病患者的身体和本体论观念有所改变,并且从伦理观点跃升至道德观点,否则对白化病患者的负面态度不会改变。跃升至道德观点并不意味着抛弃伦理观点,而只是建议两者在尊重普遍接受的人类行为规范方面相互妥协。为了实现这一点,我将表明在政策制定、法律、医疗服务和教育等领域还有很多工作要做。