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本文引用的文献

1
Use of mobile device technology to continuously collect patient-reported symptoms during radiation therapy for head and neck cancer: A prospective feasibility study.利用移动设备技术在头颈癌放射治疗期间持续收集患者报告的症状:一项前瞻性可行性研究。
Adv Radiat Oncol. 2016 Feb 18;1(2):115-121. doi: 10.1016/j.adro.2016.02.001. eCollection 2016 Apr-Jun.
2
Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial.常规癌症治疗期间通过患者报告结局进行症状监测:一项随机对照试验。
J Clin Oncol. 2016 Feb 20;34(6):557-65. doi: 10.1200/JCO.2015.63.0830. Epub 2015 Dec 7.
3
Computerized patient-reported symptom assessment in radiotherapy: a pilot randomized, controlled trial.放射治疗中计算机化患者报告症状评估:一项随机对照试验试点研究
Support Care Cancer. 2016 Apr;24(4):1897-906. doi: 10.1007/s00520-015-2983-3. Epub 2015 Oct 16.
4
Inclusion of patient-reported outcome measures in registered clinical trials: Evidence from ClinicalTrials.gov (2007-2013).注册临床试验中纳入患者报告的结局指标:来自美国国立医学图书馆临床试验数据库(2007 - 2013年)的证据
Contemp Clin Trials. 2015 Jul;43:1-9. doi: 10.1016/j.cct.2015.04.004. Epub 2015 Apr 18.
5
Patient-reported outcomes in routine cancer clinical practice: a scoping review of use, impact on health outcomes, and implementation factors.在常规癌症临床实践中使用患者报告结局的情况:对使用情况、对健康结局的影响以及实施因素的范围综述。
Ann Oncol. 2015 Sep;26(9):1846-1858. doi: 10.1093/annonc/mdv181. Epub 2015 Apr 17.
6
Feasibility of an interactive ICT-platform for early assessment and management of patient-reported symptoms during radiotherapy for prostate cancer.用于前列腺癌放疗期间患者报告症状的早期评估和管理的交互式信息通信技术平台的可行性。
Eur J Oncol Nurs. 2015 Oct;19(5):523-8. doi: 10.1016/j.ejon.2015.02.013. Epub 2015 Mar 23.
7
Bringing PROMIS to practice: brief and precise symptom screening in ambulatory cancer care.将PROMIS应用于实践:门诊癌症护理中的简短精准症状筛查。
Cancer. 2015 Mar 15;121(6):927-34. doi: 10.1002/cncr.29104. Epub 2014 Nov 6.
8
Development of the National Cancer Institute's patient-reported outcomes version of the common terminology criteria for adverse events (PRO-CTCAE).国家癌症研究所患者报告结局版通用不良事件术语标准(PRO-CTCAE)的制定。
J Natl Cancer Inst. 2014 Sep 29;106(9). doi: 10.1093/jnci/dju244. Print 2014 Sep.
9
Comparative effectiveness study of patient-reported outcomes after proton therapy or intensity-modulated radiotherapy for prostate cancer.质子治疗与调强放疗前列腺癌患者报告结局的比较效果研究。
Cancer. 2014 Apr 1;120(7):1076-82. doi: 10.1002/cncr.28536. Epub 2013 Dec 30.
10
A systematic review of the impact of routine collection of patient reported outcome measures on patients, providers and health organisations in an oncologic setting.在肿瘤学环境中,系统评价常规收集患者报告的结果测量对患者、提供者和卫生组织的影响。
BMC Health Serv Res. 2013 Jun 11;13:211. doi: 10.1186/1472-6963-13-211.

将患者报告结局调查作为常规护理的一部分实施:来自一所学术性放射肿瘤学部门的经验教训。

Implementing patient-reported outcome surveys as part of routine care: lessons from an academic radiation oncology department.

作者信息

Rotenstein Lisa S, Agarwal Ankit, O'Neil Kelly, Kelly Andrea, Keaty Maureen, Whitehouse Colleen, Kalinowski Barbara, Orio Peter F, Wagle Neil, Martin Neil E

机构信息

Harvard Medical School, Boston, MA, USA.

Department of Radiation Oncology, Brigham and Women's Hospital, Boston, MA, USA.

出版信息

J Am Med Inform Assoc. 2017 Sep 1;24(5):964-968. doi: 10.1093/jamia/ocx009.

DOI:10.1093/jamia/ocx009
PMID:28339771
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7651917/
Abstract

Patient reported outcomes (PROs) are reports of health conditions that come directly from patients. Use of PROs has been associated with improved patient outcomes, enhanced quality of life, and reduced end-of-life spending. Yet there are still outstanding questions regarding the process of implementing PRO collection in routine practice. In this article, we describe the experience of selecting and implementing PROs in a multisite, multidisease academic medical center-based radiation oncology practice and demonstrate that such large-scale rollout is feasible. We establish that PROs can be implemented with minimal to no workflow delays, are generally seen as valuable by clinicians, and can enhance patient-doctor communication. We additionally detail the challenges involved in selecting clinically relevant PRO questionnaires and the centrality of physician buy-in, easy data access, and clear workflows to successful implementation.

摘要

患者报告结局(PROs)是直接来自患者的健康状况报告。使用PROs与改善患者结局、提高生活质量和减少临终支出相关。然而,在常规实践中实施PRO收集过程仍存在一些悬而未决的问题。在本文中,我们描述了在一个多地点、多疾病的学术医疗中心的放射肿瘤学实践中选择和实施PROs的经验,并证明这种大规模推广是可行的。我们确定,PROs可以在最小化工作流程延迟甚至无延迟的情况下实施,临床医生普遍认为其有价值,并且可以加强医患沟通。我们还详细说明了选择临床相关PRO问卷所涉及的挑战,以及医生认可、便捷的数据访问和清晰的工作流程对成功实施的核心作用。