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本文引用的文献

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The patient portal and abnormal test results: An exploratory study of patient experiences.患者门户网站与异常检查结果:一项关于患者体验的探索性研究。
Patient Exp J. 2015 Spring;2(1):148-154.
2
Understanding missed opportunities for more timely diagnosis of cancer in symptomatic patients after presentation.了解有症状患者就诊后在更及时诊断癌症方面错失的机会。
Br J Cancer. 2015 Mar 31;112 Suppl 1(Suppl 1):S84-91. doi: 10.1038/bjc.2015.47.
3
Blue Button use by patients to access and share health record information using the Department of Veterans Affairs' online patient portal.患者使用“蓝按钮”通过退伍军人事务部的在线患者门户访问和共享健康记录信息。
J Am Med Inform Assoc. 2014 Jul-Aug;21(4):657-63. doi: 10.1136/amiajnl-2014-002723. Epub 2014 Apr 16.
4
Assessing patient-centered communication in cancer care: stakeholder perspectives.评估癌症护理中的以患者为中心的沟通:利益相关者的观点。
J Oncol Pract. 2013 Sep;9(5):e186-93. doi: 10.1200/JOP.2012.000772. Epub 2013 May 14.
5
The patient-centered medical home in the Veterans Health Administration.退伍军人健康管理局的以患者为中心的医疗之家。
Am J Manag Care. 2013 Jul 1;19(7):e263-72.
6
Root cause analysis reports help identify common factors in delayed diagnosis and treatment of outpatients.根本原因分析报告有助于识别门诊延迟诊断和治疗的常见因素。
Health Aff (Millwood). 2013 Aug;32(8):1368-75. doi: 10.1377/hlthaff.2013.0130.
7
Electronic health record-based triggers to detect potential delays in cancer diagnosis.基于电子健康记录的触发因素来检测癌症诊断中的潜在延迟。
BMJ Qual Saf. 2014 Jan;23(1):8-16. doi: 10.1136/bmjqs-2013-001874. Epub 2013 Jul 19.
8
Patients' and family members' views on patient-centered communication during cancer care.患者和家属对癌症护理中以患者为中心的沟通的看法。
Psychooncology. 2013 Nov;22(11):2487-95. doi: 10.1002/pon.3317. Epub 2013 Jun 18.
9
Types and origins of diagnostic errors in primary care settings.初级保健环境中诊断错误的类型和来源。
JAMA Intern Med. 2013 Mar 25;173(6):418-25. doi: 10.1001/jamainternmed.2013.2777.
10
Postreferral colonoscopy delays in diagnosis of colorectal cancer: a mixed-methods analysis.转诊后结肠镜检查在结直肠癌诊断中的延迟:一项混合方法分析。
Qual Manag Health Care. 2012 Oct-Dec;21(4):252-61. doi: 10.1097/QMH.0b013e31826d1f28.

利用在线平台监测癌症护理中以患者为中心的沟通的设想。

A vision for using online portals for surveillance of patient-centered communication in cancer care.

作者信息

Singh Hardeep, Arora Neeraj K, Mazor Kathleen M, Street Richard L

机构信息

Houston VA Health Services Research & Development; Baylor College of Medicine,

Patient Centered Outcomes Research Institute (PCORI),

出版信息

Patient Exp J. 2015 Fall-Winter;2(2):125-131.

PMID:28345019
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5363702/
Abstract

The Veterans Health Administration (VHA) is charged with providing high-quality health care, not only in terms of technical competence but also with regard to patient-centered care experiences. Patient-centered coordination of care and communication are especially important in cancer care, as deficiencies in these areas have been implicated in many cases of delayed cancer diagnosis and treatment. Additionally, because cancer care facilities are concentrated within the VHA system, geographical and system-level barriers may present prominent obstacles to quality care. Systematic assessment of patient-centered communication (PCC) may help identify both individual veterans who are at risk of suboptimal care and opportunities for quality improvement initiatives at the service, facility, or system-wide level. In this manuscript, we describe our vision to implement an assessment of PCC through patient self-report to improve the quality of cancer care and other health services in the VHA. We outline a possible strategy to assess PCC that leverages the VHA's existing initiative to promote use of an online personal health record for veterans (MyHealthVet). Questionnaires administered periodically or following specific episodes of care can be targeted to assess PCC in cancer care. Assessment of PCC can also be tied to clinical and administrative data for more robust analysis of patient outcomes. Ultimately, the goal of any assessment of PCC is to gather valid, actionable data that can assist VHA clinicians and staff with providing the best possible care for veterans with cancer.

摘要

退伍军人健康管理局(VHA)负责提供高质量的医疗保健服务,不仅要具备技术能力,还要提供以患者为中心的就医体验。在癌症护理中,以患者为中心的护理协调和沟通尤为重要,因为这些领域的不足在许多癌症诊断和治疗延迟的案例中都有涉及。此外,由于癌症护理设施集中在VHA系统内,地理和系统层面的障碍可能会给优质护理带来突出的阻碍。对以患者为中心的沟通(PCC)进行系统评估,可能有助于识别那些有接受次优护理风险的退伍军人个体,以及在服务、机构或全系统层面开展质量改进举措的机会。在本手稿中,我们描述了通过患者自我报告来实施PCC评估的愿景,以提高VHA中癌症护理和其他健康服务的质量。我们概述了一种评估PCC的可能策略,该策略利用VHA现有的倡议,以促进退伍军人使用在线个人健康记录(MyHealthVet)。定期或在特定护理事件后发放的问卷可以针对性地评估癌症护理中的PCC。对PCC的评估还可以与临床和管理数据相关联,以便更全面地分析患者的治疗结果。最终,任何PCC评估的目标都是收集有效、可操作的数据,以帮助VHA的临床医生和工作人员为患癌退伍军人提供尽可能最好的护理。