Türkoğlu Serhat, Bilgiç Ayhan, Türkoğlu Gözde, Yilmaz Savaş
Department of Child and Adolescent Psychiatry, Selçuk University School of Medicine, Konya, Turkey.
Department of Child and Adolescent Psychiatry, Necmettin Erbakan University Meram School of Medicine, Konya, Turkey.
Noro Psikiyatr Ars. 2016 Mar;53(1):49-54. doi: 10.5152/npa.2015.10132. Epub 2016 Mar 1.
Cerebral palsy (CP) interferes with the quality of life (QOL) of children with CP, and given that parents report having to often guide their children's decision making, it is important to understand the psychosocial factors that have a potential influence on parent-proxy reports. The purpose of this study was to investigate the impact of maternal anxiety and depression symptoms on parent proxy-reported health-related QOL (HRQOL) for children with CP, while controlling other clinical and demographical variables that may have affect HRQOL.
The HRQOL scores of 97 outpatients with CP, aged 7-18 years, were assessed using the Pediatric QOL Inventory, Parent version (PedsQL-P). Each patient's type of CP, gross and fine motor function levels, severity of intellectual disability (ID), and other clinical variables were recorded. The levels of depression symptoms in each mother were assessed using the Beck Depression Inventory (BDI), and the levels of anxiety symptoms were assessed with the Beck Anxiety Inventory (BAI).
According to regression analyses, male gender, severity of ID, and higher mothers' BAI scores had negative effects on the PedsQL-P physical scores, and severity of ID and higher mothers' BDI scores had negative effects on the PedsQL-P psychosocial scores. Regarding the determinants of total HRQOL, severity of ID, GMFCS score, and higher mothers' BDI scores negatively impacted the PedsQL-P total scores.
Our findings show significant predictor effects of the mothers' anxiety and depressive symptoms, independent from other clinical variables, on the mother-rated HRQOL scores in children with CP.
脑瘫（CP）会影响脑瘫患儿的生活质量（QOL），鉴于家长报告经常需要指导孩子做决策，了解可能对家长代理报告有潜在影响的社会心理因素很重要。本研究的目的是调查母亲焦虑和抑郁症状对脑瘫患儿家长代理报告的健康相关生活质量（HRQOL）的影响，同时控制其他可能影响HRQOL的临床和人口统计学变量。
使用儿童生活质量量表家长版（PedsQL-P）对97名年龄在7至18岁的脑瘫门诊患儿的HRQOL得分进行评估。记录每名患儿的脑瘫类型、粗大和精细运动功能水平、智力残疾（ID）严重程度及其他临床变量。使用贝克抑郁量表（BDI）评估每位母亲的抑郁症状水平，使用贝克焦虑量表（BAI）评估焦虑症状水平。
根据回归分析，男性性别、ID严重程度以及母亲较高的BAI得分对PedsQL-P身体领域得分有负面影响，ID严重程度和母亲较高的BDI得分对PedsQL-P社会心理领域得分有负面影响。关于总HRQOL的决定因素，ID严重程度、GMFCS评分以及母亲较高的BDI得分对PedsQL-P总分有负面影响。
我们的研究结果表明，母亲的焦虑和抑郁症状独立于其他临床变量，对脑瘫患儿母亲评定的HRQOL得分有显著的预测作用。
