Department of Pediatrics, University of Utah School of Medicine, PO Box 581289, Salt Lake City, UT 84158, USA.
PM R. 2011 Feb;3(2):98-104. doi: 10.1016/j.pmrj.2010.11.006.
To determine associations between the function of parents and that of their children with cerebral palsy (CP) and the influence of the levels of the child's impairment, parenting stress, parent self-efficacy, and family functioning.
Descriptive correlational cross-sectional survey.
Academic tertiary care children's hospital and pediatric specialty orthopedic hospital in the intermountain West.
A total of 51 parents or guardians who provide the majority of daily care in their homes for their children with CP between the ages of 5 and 18 years.
Survey of a convenience sample of parents of children with CP.
(1) Short-form 36 Health Survey v2.0 to measure parent mental and physical health; (2) Pediatric Quality of Life Inventory v4.0 to measure the physical, social, school, emotional and psychosocial function, and total quality of life of their children with CP; (3) Gross Motor Function Classification System to assess severity of the child's CP; (4) Parenting Stress Index; (5) Family Environment Scale, relationship dimension; and (6) Self-Efficacy for Parenting Tasks Index.
Positive correlations were found between parent physical health and the physical function of their children with CP (r = 0.32) and between parent mental health and the emotional function (r = 0.46), psychosocial function (r = 0.40), and total health-related quality of life (r = 0.38) of their children. When adjusting for severity of CP, we found that parenting stress and parenting self-efficacy attenuated these relationships to varying degrees.
A clear positive correlation was found between the function of parents and the function of their children with CP. Although a cross-sectional study does not demonstrate the direction of the relationship, it seems reasonable to conclude that clinicians who are attempting to directly maximize child function should also consider the potential value of interventions that support and improve parent function, particularly mental health.
确定脑瘫患儿父母的功能与患儿功能之间的关系，以及患儿损伤程度、父母养育压力、父母自我效能感和家庭功能的影响。
描述性相关的横断面调查。
美国西部山区的一所学术性三级儿童保健医院和一家儿科专业矫形医院。
共 51 名父母或监护人，他们为家中年龄在 5 至 18 岁的脑瘫患儿提供大部分日常护理。
对脑瘫患儿父母的便利样本进行调查。
（1）短式 36 健康调查 v2.0 评估父母的心理健康和身体健康；（2）儿科生活质量量表 v4.0 评估其脑瘫患儿的身体、社会、学校、情感和心理社会功能以及整体生活质量；（3）粗大运动功能分类系统评估患儿脑瘫的严重程度；（4）父母养育压力指数；（5）家庭环境量表，关系维度；以及（6）养育任务自我效能感指数。
父母身体健康与脑瘫患儿的身体功能（r = 0.32）以及父母心理健康与脑瘫患儿的情感功能（r = 0.46）、心理社会功能（r = 0.40）和整体健康相关生活质量（r = 0.38）呈正相关。当调整脑瘫严重程度时，我们发现养育压力和养育自我效能在不同程度上减弱了这些关系。
父母的功能与脑瘫患儿的功能之间存在明显的正相关。虽然横断面研究不能证明这种关系的方向，但有理由得出这样的结论：试图直接最大限度地提高患儿功能的临床医生也应该考虑支持和改善父母功能的干预措施的潜在价值，尤其是心理健康。
