欧洲痴呆症患者及其家庭护理人员会议中心支持计划的适应性实施与评估比较；MEETINGDEM项目研究方案
Comparison of the adaptive implementation and evaluation of the Meeting Centers Support Program for people with dementia and their family carers in Europe; study protocol of the MEETINGDEM project.
作者信息
Dröes R M, Meiland F J M, Evans S, Brooker D, Farina E, Szcześniak D, Van Mierlo L D, Orrell M, Rymaszewska J, Chattat R
机构信息
Department of Psychiatry, VU University medical center/GGZinGeest, Postbox 74077, 1070 BB, Amsterdam, The Netherlands.
Association for Dementia Studies, University of Worcester, Henwick Grove, Worcester, WR26AJ, UK.
出版信息
BMC Geriatr. 2017 Apr 4;17(1):79. doi: 10.1186/s12877-017-0472-x.
BACKGROUND
The MEETINGDEM study aims to implement and evaluate an innovative, inclusive, approach to supporting community dwelling people with mild to moderate dementia and their family carers, called the Meeting Centers Support Program (MCSP), in three countries in the European Union (EU): Italy, Poland and United Kingdom. Demonstrated benefits of this person-centered approach, developed in The Netherlands, include high user satisfaction, reduced behavioral and mood problems, delayed admission to residential care, lower levels of caregiving-related stress, higher carer competence, and improved collaboration between care and welfare organizations.
METHODS
The project will be carried out over a 36 month period. Project partners in the three countries will utilize, and adapt, strategies and tools developed in the Netherlands. In Phase One (month 1-18) activities will focus on establishing an initiative group of relevant organizations and user representatives in each country, exploring pathways to care and potential facilitators and barriers to implementing the program, and developing country specific implementation plans and materials. In Phase Two (month 19‑36) training will be provided to organizations and staff, after which the meeting centers will be established and evaluated for impact on behavior, mood and quality of life of people with dementia and carers, cost-effectiveness, changes in service use, user satisfaction and implementation process.
DISCUSSION
An overall evaluation will draw together findings from the three countries to develop recommendations for successful implementation of MCSP across the EU. If the Meeting Centers approach can be widely implemented, this could lead to major improvements in dementia care across Europe and beyond.
TRIAL REGISTRATION
The trial was retrospectively registered in May 2016: trial number: NTR5936 .
背景
“MEETINGDEM研究”旨在在欧盟的三个国家（意大利、波兰和英国）实施并评估一种创新、包容的方法，以支持患有轻至中度痴呆症的社区居民及其家庭护理人员，该方法称为会议中心支持计划（MCSP）。这种在荷兰开发的以人为本的方法已证明的益处包括高用户满意度、减少行为和情绪问题、延迟入住养老院、降低与护理相关的压力水平、提高护理人员能力以及改善护理与福利组织之间的协作。
方法
该项目将在36个月内开展。三个国家的项目合作伙伴将采用并调整在荷兰开发的策略和工具。在第一阶段（第1 - 18个月），活动将集中于在每个国家建立一个由相关组织和用户代表组成的倡议小组，探索护理途径以及实施该计划的潜在促进因素和障碍，并制定针对特定国家的实施计划和材料。在第二阶段（第19 - 36个月），将为组织和工作人员提供培训，之后建立会议中心并评估其对痴呆症患者和护理人员的行为、情绪和生活质量的影响、成本效益、服务使用变化、用户满意度以及实施过程。
讨论
全面评估将汇总三个国家的研究结果，为在整个欧盟成功实施MCSP制定建议。如果会议中心方法能够得到广泛实施，这可能会给欧洲及其他地区的痴呆症护理带来重大改善。
试验注册
该试验于2016年5月进行回顾性注册：试验编号：NTR5936 。
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