Ukuhor Hyacinth O, Hirst Janet, Closs S José, Montelpare William J
Department of Public Health, Saudi Electronic University, P.O. Box 93499, Riyadh 11673, Saudi Arabia.
School of Healthcare, University of Leeds, Baines Wing, Room 3.10, Leeds LS2 9JT, UK.
J Pregnancy. 2017;2017:4975091. doi: 10.1155/2017/4975091. Epub 2017 Mar 22.
. The aim of this research was to explore the influence of service organisation and delivery on providers and users' interactions and decision-making in the context of Down's syndrome screening. . A qualitative descriptive study involving online interviews conducted with a purposive sample of 34 community midwives, 35 pregnant women, and 15 partners from two maternity services in different health districts in England. Data were analysed using a combination of grounded theory principles and content analysis and a framework was developed. . The main emerging concepts were organisational constraints, power, routinisation, and tensions. Providers were concerned about being time-limited that encouraged routine, minimal information-giving and lacked skills to check users' understanding. Users reported their participation was influenced by providers' attitudes, the ambience of the environment, asymmetric power relations, and the offer and perception of screening as a routine test. Discordance between the national programme's policy of nondirective informed choice and providers' actions of recommending and arranging screening appointments was unexpected. Additionally, providers and users differing perceptions of emotional effects of information, beliefs, and expectations created tensions within them, between them, and in the antenatal environment. . A move towards a social model of care may be beneficial to empower service users and create less tension for providers and users.
本研究的目的是探讨在唐氏综合征筛查背景下,服务组织与提供方式对提供者与使用者之间互动及决策的影响。一项定性描述性研究,对来自英格兰不同健康区的两家产科服务机构的34名社区助产士、35名孕妇和15名伴侣进行了有目的抽样的在线访谈。采用扎根理论原则与内容分析相结合的方法对数据进行分析,并构建了一个框架。主要出现的概念包括组织限制、权力、常规化和紧张关系。提供者担心时间有限,这促使他们采用常规方式、提供最少信息,且缺乏检查使用者理解情况的技能。使用者报告称,他们的参与受到提供者态度、环境氛围、权力不对称关系以及将筛查视为常规检查的提议和认知的影响。国家项目的非指导性知情选择政策与提供者推荐和安排筛查预约的行为之间存在不一致,这是出乎意料的。此外,提供者和使用者对信息、信念和期望的情感影响存在不同认知,这在他们自身之间、彼此之间以及产前环境中造成了紧张关系。向社会关怀模式转变可能有利于增强服务使用者的权能,并减少提供者和使用者之间的紧张关系。