Mayo Nancy E, Figueiredo Sabrina, Ahmed Sara, Bartlett Susan J
Department of Medicine, School of Physical and Occupational Therapy, McGill University, Center for Outcomes Research and Evaluation, Research Institute-McGill University Health Center, Ross Pavilion R4.29, 687 Pine Avenue West, Montreal, Quebec, Canada H3A 1A1.
School of Physical and Occupational Therapy, McGill University, 3654 Promenade Sir-William-Osler, Montreal, Quebec, Canada H3G 1Y5.
J Clin Epidemiol. 2017 Sep;89:119-124. doi: 10.1016/j.jclinepi.2017.04.013. Epub 2017 Apr 20.
We outline different health outcomes and describe how multiple perspectives can be harnessed to optimize accuracy of key data collected about patients with chronic conditions. The terms health status, health-related quality of life, and quality of life are often used interchangeably without recognizing that they have different meanings, as are the terms used to refer to the different components of function. Although the advantages and limitations of existing frameworks and perspectives are largely understood, greater precision is needed when using health outcome terminology and identifying optimal sources of information.
A refinement of the current taxonomy is proposed to distinguish between patient-reported outcomes and self-report outcomes and expand the concept of clinically reported outcomes to include those assessed by performance and emerging technologies.
Health outcomes yield important information that can be used to improve the lives of many people. Now is the time to "talk the talk" as part of larger coordinated efforts within and across countries to identify and measure what matters most in health.
我们概述了不同的健康结果，并描述了如何利用多种视角来优化收集到的慢性病患者关键数据的准确性。健康状况、健康相关生活质量和生活质量这些术语经常被互换使用，却没有认识到它们具有不同的含义，用于指代功能不同组成部分的术语也是如此。尽管现有框架和视角的优缺点已基本为人所知，但在使用健康结果术语和确定最佳信息来源时，仍需要更高的精确性。
提议对当前的分类法进行细化，以区分患者报告结果和自我报告结果，并扩展临床报告结果的概念，将通过表现和新兴技术评估的结果包括在内。
健康结果能产生重要信息，可用于改善许多人的生活。现在是时候“付诸行动”了，这是各国国内和跨国更大规模协调努力的一部分，目的是确定并衡量健康中最重要的因素。
