Mamiya Hiroshi, Lix Lisa M, Gardner William, Bartlett Susan J, Ahmed Sara, Buckeridge David L
Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, 1020 Pine Avenue West, Montreal, Quebec, Canada H3A 1A2.
Department of Community Health Sciences, University of Manitoba, S113-750 Bannatyne Avenue, Winnipeg, Manitoba, Canada R3E 0W3.
J Clin Epidemiol. 2017 Sep;89:142-147. doi: 10.1016/j.jclinepi.2017.04.018. Epub 2017 Apr 21.
A comprehensive picture of population health status can be captured by the incorporation of patient-reported outcome measures into population health monitoring.
The aim of the study was to identify the current state, opportunities, and future research related to the utilization of patient-reported outcome measures for population health monitoring in Canada.
Patient-reported outcome measures can help to identify community health needs in public health topics including injury, chronic disease, and communicable disease. They are currently collected in major national surveys in Canada, while electronic medical records, personal health records, and online patient communities could facilitate rapid and cost-effective collection of population-based data. Their effective use requires well-validated measurements and consideration to the factors affecting validity and reproducibility and the modes of administering questionnaires. Methodologically, relevant public health application of patient-reported outcome measures includes analysis assessing measurement comparability across sociodemographically and clinically diverse population and the influence of physical and social environment. Research is needed to develop and apply analytical methods, harmonize patient-reported outcome measures across data sources and health jurisdictions, and link these measures to traditional epidemiologic indicators. Achieving these goals will benefit from collaboration among governmental agencies and expert groups.
将患者报告结局测量纳入人群健康监测，可全面了解人群健康状况。
本研究旨在确定加拿大在利用患者报告结局测量进行人群健康监测方面的现状、机遇及未来研究方向。
患者报告结局测量有助于识别公共卫生主题（包括伤害、慢性病和传染病）中的社区健康需求。目前在加拿大的主要全国性调查中会收集这些数据，而电子病历、个人健康记录和在线患者社区有助于快速且经济高效地收集基于人群的数据。其有效使用需要经过充分验证的测量方法，并考虑影响有效性和可重复性的因素以及问卷发放方式。在方法上，患者报告结局测量的相关公共卫生应用包括分析评估社会人口统计学和临床特征各异人群之间测量的可比性，以及物理和社会环境的影响。需要开展研究以开发和应用分析方法，在不同数据源和健康管辖区域之间统一患者报告结局测量，并将这些测量与传统流行病学指标相联系。实现这些目标将受益于政府机构和专家团体之间的合作。
