Carrillo G Gloria M, Sánchez-Herrera Beatriz, Barrera-Ortiz Lucy
Facultad de Enfermería, Universidad Nacional de Colombia, Bogotá, Colombia,
Rev Salud Publica (Bogota). 2015 May;17(3):394-403. doi: 10.15446/rsap.v17n3.32408.
Objective To describe the caring ability of family caregivers of children with cancer. Method This is a descriptive, exploratory study with a quantitative approach. A sample of 85 family caregivers of children with cancer was taken. After a characterization, they respondd to the Caring Ability Inventory adapted for family caregivers of people with chronic non-communicable disease. Results The family caregivers werecharacterized by age, gender, socioeconomic level, education level, family relationship with the care receiver, social support, time of experience, and burden of care generated by the degree of the receiver's illness. The overall caring ability was described, as well as the ability of each dimension, including knowledge, courage, and patience. Conclusions The principal family caregivers of children with cancer were mainly the mothers of the children with cancer. 70.6 % of them do not possess sufficient ability to take care of their children with cancer. 31.8 % of the group had a lower ability level. This finding, together with the demands of coping with the fact of having a child with cancer, can be a great burden to family caregivers and generate risk for the ill children under their care.
目的 描述癌症患儿家庭照顾者的照护能力。方法 这是一项采用定量方法的描述性、探索性研究。选取了85名癌症患儿的家庭照顾者作为样本。在进行特征描述后，他们对适用于慢性非传染性疾病患者家庭照顾者的照护能力量表进行了回应。结果 家庭照顾者的特征包括年龄、性别、社会经济水平、教育程度、与受照顾者的家庭关系、社会支持、经验时长以及受照顾者疾病程度所产生的照护负担。描述了总体照护能力以及各个维度的能力，包括知识、勇气和耐心。结论 癌症患儿的主要家庭照顾者主要是癌症患儿的母亲。其中70.6%的人没有足够的能力照顾患癌子女。该群体中31.8%的人能力水平较低。这一发现，再加上应对家中有患癌子女这一事实的需求，可能会给家庭照顾者带来巨大负担，并给他们所照顾的患病儿童带来风险。
