Sperens Maria, Hamberg Katarina, Hariz Gun-Marie
Department of Community Medicine and Rehabilitation, Occupational Therapy, Umeå University, 901 87 Umeå, Sweden.
Department of Public Health and Clinical Medicine, Family Medicine, Umeå University, 901 87 Umeå, Sweden.
Parkinsons Dis. 2017;2017:1939831. doi: 10.1155/2017/1939831. Epub 2017 Mar 28.
. To explore, in female and male patients with medically treated, moderately advanced Parkinson's disease (PD), their knowledge and reasoning about Deep Brain Stimulation (DBS). . 23 patients with PD (10 women), aged 46-70, were interviewed at a mean of 8 years after diagnosis, with open-ended questions concerning their reflections and considerations about DBS. The interviews were transcribed verbatim and analysed according to the difference and similarity technique in Grounded Theory. . From the patients' narratives, the core category "Processing DBS: balancing symptoms, fears and hopes" was established. The patients were knowledgeable about DBS and expressed cautious and well considered attitudes towards its outcome but did not consider themselves ill enough to undergo DBS. They were aware of its potential side-effects. They considered DBS as the last option when oral medication is no longer sufficient. There was no difference between men and women in their reasoning and attitudes towards DBS. . This study suggests that knowledge about the pros and cons of DBS exists among PD patients and that they have a cautious attitude towards DBS. Our patients did not seem to endorse an earlier implementation of DBS, and they considered that it should be the last resort when really needed.
为探究接受药物治疗的中度晚期帕金森病（PD）女性和男性患者对脑深部电刺激（DBS）的了解及推理情况。对23例PD患者（10名女性）进行了访谈，患者年龄在46 - 70岁之间，诊断后平均8年接受访谈，采用开放式问题询问他们对DBS的思考与考量。访谈内容逐字转录，并根据扎根理论中的差异与相似性技术进行分析。从患者叙述中，确立了核心类别“应对DBS：平衡症状、恐惧与希望”。患者对DBS有所了解，对其结果表达了谨慎且经过深思熟虑的态度，但不认为自己病得足以接受DBS。他们知晓其潜在副作用。他们认为当口服药物不再足够时，DBS是最后的选择。男性和女性对DBS的推理及态度并无差异。本研究表明，PD患者了解DBS的利弊且对其持谨慎态度。我们的患者似乎不支持更早实施DBS，他们认为DBS应在真正需要时作为最后手段。
