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World Neurosurg. 2019 Jan;121:e654-e660. doi: 10.1016/j.wneu.2018.09.181. Epub 2018 Oct 4.
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Neural Regen Res. 2018 Aug;13(8):1342-1345. doi: 10.4103/1673-5374.235220.
3
Evaluation of Patient Perspectives Toward Awake, Frame-Based Deep-Brain Stimulation Surgery.患者对清醒状态下基于框架的脑深部电刺激手术的观点评估
World Neurosurg. 2018 Mar;111:e601-e607. doi: 10.1016/j.wneu.2017.12.122. Epub 2017 Dec 28.
4
Are Patients Ready for "EARLYSTIM"? Attitudes towards Deep Brain Stimulation among Female and Male Patients with Moderately Advanced Parkinson's Disease.患者对“EARLYSTIM”疗法做好准备了吗？中晚期帕金森病男女患者对脑深部电刺激疗法的态度
Parkinsons Dis. 2017;2017:1939831. doi: 10.1155/2017/1939831. Epub 2017 Mar 28.
5
Underutilization of deep brain stimulation for Parkinson's disease? A survey on possible clinical reasons.帕金森病深部脑刺激疗法的利用不足？关于可能临床原因的一项调查。
Acta Neurochir (Wien). 2017 May;159(5):771-778. doi: 10.1007/s00701-017-3122-3. Epub 2017 Mar 3.
6
Knowledge, attitudes and perceptions of Parkinson's disease: A cross-sectional survey of Asian patients.帕金森病的知识、态度和认知：一项针对亚洲患者的横断面调查。
J Neurol Sci. 2017 Mar 15;374:69-74. doi: 10.1016/j.jns.2016.12.063. Epub 2016 Dec 29.
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Public Awareness and Knowledge about Parkinson's Disease: A National Population Based Survey in South Korea.韩国公众对帕金森病的认知与了解：一项基于全国人口的调查
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The decision-making process leading to deep brain stimulation in men and women with parkinson's disease - an interview study.帕金森病男性和女性患者接受脑深部电刺激的决策过程——一项访谈研究
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关于帕金森病深部脑刺激的知识、态度和认知：来自印度单一中心的观察结果

Knowledge, Attitude, and Perceptions about Deep Brain Stimulation for Parkinson's Disease: Observations from a Single Indian Center.

作者信息

Prasad Shweta, Bhattacharya Amitabh, Sahoo Lulup Kumar, Batra Dhruv, Kamble Nitish, Yadav Ravi, Srinivas Dwarakanath, Pal Pramod Kumar

机构信息

Department of Clinical Neurosciences, National Institute of Mental Health & Neurosciences, Karnataka, India.

Department of Neurology, National Institute of Mental Health & Neurosciences, Karnataka, India.

出版信息

J Mov Disord. 2021 Jan;14(1):60-64. doi: 10.14802/jmd.20066. Epub 2020 Sep 21.

DOI:10.14802/jmd.20066
PMID:32942838
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7840234/
Abstract

OBJECTIVE

Willingness to undergo deep brain stimulation (DBS) among patients with Parkinson's disease (PD) and their overall satisfaction with the procedure is highly dependent upon expectations, which are based on the core concepts of knowledge, attitude and perceptions. The present study aims to evaluate these factors in patients and caregivers with PD from a single tertiary care hospital in India.

METHODS

A structured questionnaire designed to assess the knowledge, attitude and perceptions about DBS in PD was administered to 400 patients with PD and their caregivers.

RESULTS

A very small proportion of patients and caregivers were aware of DBS. Even those who claimed to be aware of DBS were inadequately informed and had incorrect knowledge, which led to wrong attitudes and perceptions.

CONCLUSION

There are very significant knowledge gaps and misconceptions regarding DBS among patients with PD and caregivers. Adequate and appropriate education is necessary to clarify these misconceptions to avoid the development of unrealistic expectations and poor satisfaction.

摘要

目的

帕金森病（PD）患者接受脑深部电刺激（DBS）的意愿及其对该手术的总体满意度高度依赖于期望，而期望基于知识、态度和认知的核心概念。本研究旨在评估印度一家三级护理医院中PD患者及其照料者的这些因素。

方法

对400例PD患者及其照料者进行了一份结构化问卷，以评估他们对PD中DBS的知识、态度和认知。

结果

只有极少数患者及其照料者了解DBS。即使那些声称了解DBS的人也了解不足且知识有误，这导致了错误的态度和认知。

结论

PD患者及其照料者对DBS存在非常显著的知识差距和误解。需要进行充分且恰当的教育以澄清这些误解，避免产生不切实际的期望和低满意度。