Suppr超能文献

新诊断头颈部癌症患者-照护者二元组中的身心健康与支持

Physical and emotional well-being and support in newly diagnosed head and neck cancer patient-caregiver dyads.

作者信息

Sterba Katherine R, Zapka Jane, Armeson Kent E, Shirai Keisuke, Buchanan Amy, Day Terry A, Alberg Anthony J

机构信息

a Hollings Cancer Center , Medical University of South Carolina , Charleston , SC , USA.

出版信息

J Psychosoc Oncol. 2017 Nov-Dec;35(6):646-665. doi: 10.1080/07347332.2017.1323817. Epub 2017 May 1.

Abstract

The purpose of this study was to examine the physical and emotional well-being and social support in newly diagnosed head and neck cancer (HNC) patients and caregivers and identify sociodemographic, clinical, and behavioral risk factors associated with compromised well-being in patients and caregivers. Newly diagnosed HNC patients and their primary caregivers (N = 72 dyads) completed questionnaires before treatment assessing physical and mental well-being, depression, cancer worry, and open-ended support questions. Patients reported worse physical well-being than caregivers (p < 0.05) but similar levels of mental well-being. Caregivers reported providing emotional and instrumental support most frequently with an emphasis on nutrition and assistance with speech, appearance, and addictions. Both patients and their caregivers reported suboptimal mental well-being and depression. Smoking was associated with compromised well-being in patients, caregivers, and dyads. Compromised well-being in patients and their caregivers was more likely when patients were younger, had worse symptoms, and smoked/consumed alcohol (p < 0.05). While patients face more physical strain than caregivers, both equally confront emotional challenges. Results highlight risk factors for compromised well-being in both patients and their caregivers that should be assessed at diagnosis to guide identification of needed dyadic-focused supportive care resources.

摘要

本研究的目的是调查新诊断的头颈癌(HNC)患者及其照料者的身心健康状况和社会支持情况,并确定与患者及其照料者幸福感受损相关的社会人口学、临床和行为风险因素。新诊断的HNC患者及其主要照料者(N = 72对)在治疗前完成了问卷调查,评估身心健康、抑郁、癌症担忧以及开放式支持问题。患者报告的身体幸福感比照料者差(p < 0.05),但心理健康水平相似。照料者报告最常提供情感和工具性支持,重点是营养以及在言语、外表和成瘾方面的帮助。患者及其照料者均报告心理健康状况欠佳和存在抑郁。吸烟与患者、照料者及其配对者的幸福感受损有关。当患者年龄较小、症状较严重且吸烟/饮酒时,患者及其照料者的幸福感更有可能受损(p < 0.05)。虽然患者面临的身体压力比照料者更大,但双方同样面临情感挑战。研究结果突出了患者及其照料者幸福感受损的风险因素,在诊断时应对这些因素进行评估,以指导确定所需的以配对为重点的支持性护理资源。

相似文献

引用本文的文献

9
Head and neck cancer survivorship consensus statement from the American Head and Neck Society.美国头颈学会发布的头颈癌生存共识声明。
Laryngoscope Investig Otolaryngol. 2021 Nov 30;7(1):70-92. doi: 10.1002/lio2.702. eCollection 2022 Feb.

本文引用的文献

4
Survivorship and Quality of Life in Head and Neck Cancer.头颈部癌症的生存与生活质量
J Clin Oncol. 2015 Oct 10;33(29):3322-7. doi: 10.1200/JCO.2015.61.4115. Epub 2015 Sep 8.
5
Advances in Supportive Care for Late Effects of Head and Neck Cancer.头颈部癌症晚期效应支持性照护的进展。
J Clin Oncol. 2015 Oct 10;33(29):3314-21. doi: 10.1200/JCO.2015.61.3836. Epub 2015 Sep 8.

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验