Nemours Children's Health System.
College of Nursing, University of Central Florida.
J Pediatr Psychol. 2017 Oct 1;42(9):970-982. doi: 10.1093/jpepsy/jsx076.
Research on the transition to adult care for young adults with type 1 diabetes (T1D) emphasizes transition readiness, with less emphasis on transition outcomes. The relatively few studies that focus on outcomes use a wide variety of measures with little reliance on stakeholder engagement for measure selection.
This study engaged multiple stakeholders (i.e., young adults with T1D, parents, pediatric and adult health care providers, and experts) in qualitative interviews to identify the content domain for developing a multidimensional measure of health care transition (HCT) outcomes.
The following constructs were identified for a planned measure of HCT outcomes: biomedical markers of T1D control; T1D knowledge/skills; navigation of a new health care system; integration of T1D into emerging adult roles; balance of parental involvement with autonomy; and "ownership" of T1D self-management.
The results can guide creation of an initial item pool for a multidimensional profile of HCT outcomes.
关于 1 型糖尿病（T1D）青年患者向成人护理过渡的研究强调了过渡准备情况，而对过渡结果的重视较少。相对较少关注结果的研究使用了各种各样的测量方法，很少依赖利益相关者参与来选择测量方法。
本研究让多个利益相关者（即 T1D 青年患者、父母、儿科和成人保健提供者以及专家）参与定性访谈，以确定开发多维医疗过渡（HCT）结果衡量标准的内容领域。
确定了计划用于衡量 HCT 结果的以下构建：T1D 控制的生物医学标志物；T1D 知识/技能；新医疗系统的导航；将 T1D 融入新兴成年角色；平衡父母的参与和自主性；以及 T1D 自我管理的“所有权”。
结果可以为 HCT 结果的多维概况创建初始项目池提供指导。
