Gemperli A, Ronca E, Scheel-Sailer A, Koch H G, Brach M, Trezzini B
Rehabilitation Services and Care Unit, Swiss Paraplegic Research, Nottwil, Switzerland.
Department of Health Sciences and Health Policy, University of Lucerne, Lucerne, Switzerland.
Spinal Cord. 2017 Sep;55(9):823-827. doi: 10.1038/sc.2017.44. Epub 2017 May 2.
This was a cross-sectional questionnaire survey.
The objective of this study was to identify the care-seeking behavior of persons with spinal cord injury (SCI) with respect to the various health care providers and ascertain circumstances that lead to situations where required care was not received.
This study was conducted in the entire country of Switzerland.
Statistical analysis of frequency of annual visits to health care providers by 17 specialties, and description of situations where health care was required but not received, in persons with chronic SCI living in the community.
Main medical contact person was the general practitioner (GP; visited by 88% during last 12 months). The physiotherapist (visited by 72%) was the health care provider with the most visits (average of 30 visits in 12 months). GPs, physiotherapists, urologists and spinal medicine specialists were often contacted in combination, by many participants, often for check-up visits. A situation where care was required but not received was reported by 53 (11%) of participants, with a substantially higher rate in migrants (29%). Main problems why care was not received were bladder and bowel problems and main reasons of care not received were regional or temporal unavailability.
Individuals with SCI are frequent users of medical services. There is no group of medical specialists that covers all needs of persons with SCI, what emphasizes health care provision from a comprehensive perspective including a wide array of services. Instances with care required but not received appeared to be rare and more likely in participants with migration background.
这是一项横断面问卷调查。
本研究的目的是确定脊髓损伤(SCI)患者在面对不同医疗服务提供者时的就医行为,并查明导致未获得所需护理情况的相关情形。
本研究在瑞士全国范围内开展。
对社区中慢性SCI患者每年就诊17个专科医疗服务提供者的频率进行统计分析,并描述需要医疗护理但未获得护理的情况。
主要医疗联系人是全科医生(在过去12个月中,88%的患者就诊过)。物理治疗师(72%的患者就诊过)是就诊次数最多的医疗服务提供者(12个月内平均就诊30次)。许多参与者经常同时联系全科医生、物理治疗师、泌尿科医生和脊柱医学专家,通常是为了进行检查。53名(11%)参与者报告了需要护理但未获得护理的情况,移民中的这一比例显著更高(29%)。未获得护理的主要问题是膀胱和肠道问题,未获得护理的主要原因是地区或时间上无法获得服务。
SCI患者是医疗服务的频繁使用者。没有一组医学专家能满足SCI患者的所有需求,这凸显了从包括广泛服务在内的综合角度提供医疗护理的重要性。需要护理但未获得护理的情况似乎很少见,在有移民背景的参与者中更有可能出现。