Jakimovska V M, Kostovski E, Biering-Sørensen F, Lidal I B
Sunnaas Rehabilitation Hospital, Science Department, Nesoddtangen, Norway.
Faculty of Medicine, Department of Physical Medicine and Rehabilitation, University of Oslo, Oslo, Norway.
Spinal Cord. 2017 Sep;55(9):864-869. doi: 10.1038/sc.2017.29. Epub 2017 Mar 21.
Descriptive cross-sectional and retrospective study.
To gain more insight into the long-term health status in persons with traumatic spinal cord injury (SCI), especially perceived psychological distress as well as self-reports of utilization of healthcare services.
Sunnaas Rehabilitation Hospital, Norway.
In total, 147 persons with SCI were examined for more than 20 years and interviewed (in 2004/2005) using a self-administrated questionnaire and General Health Questionnaire (GHQ-20). Descriptive statistics and a logistic regression analysis were conducted to identify variables associated with psychological distress.
Most participants had received SCI follow-up health services at least once after initial rehabilitation; 34% were satisfied, 51% neutral and 18% unsatisfied with the health services provided. Concerning psychological distress, 34 persons were cases according to the GHQ-20. The cases did not differ from non-cases concerning demography, time since injury, injury aetiology, injury severity, marital status or employment status. The regression analysis revealed that cases were associated (P<0.05) with more use of SCI-specific follow-ups.
In a 20+ years' post-injury SCI population, psychological distress is common and associated with the use of follow-up services. The varying satisfaction of people with SCI about healthcare services is notable, as is the finding that 20% of people with paraplegia did not use specific SCI follow-up services. The experiences of people with SCI with healthcare services need further investigation, and there is also a need for studies that examine the effects of interventions aimed at improving services and patient satisfaction.
描述性横断面研究和回顾性研究。
更深入了解创伤性脊髓损伤（SCI）患者的长期健康状况，尤其是感知到的心理困扰以及医疗服务利用情况的自我报告。
挪威松讷斯康复医院。
共有147名脊髓损伤患者接受了20多年的检查，并于2004/2005年使用自填式问卷和一般健康问卷（GHQ - 20）进行了访谈。进行描述性统计和逻辑回归分析以确定与心理困扰相关的变量。
大多数参与者在初次康复后至少接受过一次脊髓损伤随访健康服务；34%对所提供的健康服务感到满意，51%持中立态度，18%不满意。关于心理困扰，根据GHQ - 20，有34人属于病例。病例在人口统计学、受伤时间、损伤病因、损伤严重程度、婚姻状况或就业状况方面与非病例没有差异。回归分析显示，病例与更多使用脊髓损伤特异性随访相关（P<0.05）。
在受伤20多年后的脊髓损伤人群中，心理困扰很常见，且与随访服务的使用有关。脊髓损伤患者对医疗服务的满意度各不相同，这一点值得注意，同样值得注意的是，20%的截瘫患者未使用特定的脊髓损伤随访服务。脊髓损伤患者的医疗服务体验需要进一步研究，也需要研究来检验旨在改善服务和患者满意度的干预措施的效果。
