Auckland University of Technology, New Zealand.
Autism. 2018 Jul;22(5):585-596. doi: 10.1177/1362361316688869. Epub 2017 May 8.
This exploratory study assessed the relationships between autism spectrum disorder symptoms, caregiver stress and intervention helpfulness, using parent ( n = 182) ratings. Advocacy and intervention-related tasks were rated more stressful than support tasks (e.g. toileting, mealtimes), indicating that advocacy is emerging as a major caregiver task for parents. Deficits in prosocial behaviours were perceived to have the highest impact on the child's function. No difference was found between mean helpfulness ratings across the six representative interventions taken from the New Zealand context. Differences in care-related task stress across intervention choices were better explained by differences in symptom severity, suggesting that impairment drives intervention choice. Limited evidence was uncovered suggesting that intervention helpfulness moderates the relationship between core autism spectrum disorder symptoms and parent stress.
本探索性研究使用家长（n=182）的评分，评估了自闭症谱系障碍症状、照顾者压力和干预效果之间的关系。与支持性任务（如如厕、用餐时间）相比，倡导和干预相关任务的压力更大，这表明倡导已成为父母的一项主要照顾者任务。亲社会行为缺陷被认为对孩子的功能影响最大。从新西兰背景中选取的六种代表性干预措施中，没有发现平均有用性评分存在差异。干预选择中与照顾相关的任务压力的差异可以更好地用症状严重程度的差异来解释，这表明损伤会驱动干预选择。几乎没有证据表明干预效果可以调节核心自闭症谱系障碍症状与父母压力之间的关系。
