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照顾者对行为相关障碍儿童医疗保健经历的看法

Caregiver's Perspectives on the Healthcare Experiences of Children With Behaviour-Related Disorders.

作者信息

Thevathasan Naythrah, Flood Kathryn E, Luke Alison, Campbell Sarah A, Doucet Shelley, Gander Sarah

机构信息

Pediatrics, Dalhousie Medicine New Brunswick, Saint John, CAN.

Social Research, Saint John Regional Hospital, Saint John, CAN.

出版信息

Cureus. 2022 Feb 10;14(2):e22084. doi: 10.7759/cureus.22084. eCollection 2022 Feb.

DOI:10.7759/cureus.22084
PMID:35308696
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8920816/
Abstract

OBJECTIVE

Social Pediatrics focuses on targeting and mitigating the effects of the social determinants of health on a child's well-being and development. Negative health outcomes have been seen in children who have faced poverty, food insecurity, inadequate housing, and traumatic events. In particular, children who come from socioeconomically disadvantaged households are more likely to develop behavioural problems. The purpose of this study is to explore the experiences of caregivers for children with a behaviour-related disorder. This includes children affected by attention, academic, and social issues (e.g. attention-deficit hyperactivity disorder, autism spectrum disorder). This study will aim to understand the strengths, barriers, and social limitations to accessing and receiving care for children with behavioural disorders.  Methods: A qualitative descriptive design was used to conduct three focus groups. Of the 64 caregivers contacted, a total of 13 participants agreed to be in the study. All focus groups were analyzed using inductive thematic analysis.  Results: Preliminary findings suggest that caregivers value pediatricians who spend time, communicate, and make a human connection with their patients. Barriers included physician turnover, long wait times for referrals, and a lack of knowledge regarding services and programs available in their area. Three major themes emerged from this study including (1) timeliness to care, (2) advocacy, and (3) relationship building.

CONCLUSION

Findings suggested that caregivers valued pediatricians who spend time to make a human connection with their patients. Barriers included physician turnover, long wait times for referrals, and a lack of knowledge of available services. Caregivers who were young mothers felt an added layer of judgement when accessing the necessary care for their children. This study is important as it contributes to our knowledge on the role Social Pediatrics can play in the care of children with behaviour-related disorders.

摘要

目的

社会儿科学关注确定健康的社会决定因素对儿童幸福和发展的影响并减轻其作用。面临贫困、粮食不安全、住房不足和创伤性事件的儿童出现了负面健康结果。特别是,来自社会经济弱势家庭的儿童更有可能出现行为问题。本研究的目的是探索患有与行为相关障碍儿童的照料者的经历。这包括受注意力、学业和社交问题影响的儿童(如注意力缺陷多动障碍、自闭症谱系障碍)。本研究旨在了解患有行为障碍儿童获得和接受护理的优势、障碍及社会限制。

方法

采用定性描述性设计开展三个焦点小组。在联系的64名照料者中,共有13名参与者同意参与研究。所有焦点小组均采用归纳主题分析法进行分析。

结果

初步研究结果表明,照料者重视那些花时间与患者沟通并建立人际关系的儿科医生。障碍包括医生更替、转诊等待时间长以及对其所在地区可用服务和项目缺乏了解。本研究出现了三个主要主题,包括(1)护理及时性,(2)宣传,(3)建立关系。

结论

研究结果表明,照料者重视那些花时间与患者建立人际关系的儿科医生。障碍包括医生更替、转诊等待时间长以及对可用服务缺乏了解。年轻母亲照料者在为孩子获得必要护理时会感到额外的评判。本研究很重要,因为它有助于我们了解社会儿科学在患有与行为相关障碍儿童护理中可发挥的作用。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e59/8920816/1fabcab25884/cureus-0014-00000022084-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e59/8920816/1fabcab25884/cureus-0014-00000022084-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e59/8920816/1fabcab25884/cureus-0014-00000022084-i01.jpg

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