患有肥厚型心肌病并植入了除颤器的生活。
Living with hypertrophic cardiomyopathy and an implantable defibrillator.
作者信息
Magnusson Peter, Jonsson Jessica, Mörner Stellan, Fredriksson Lennart
机构信息
Cardiology Research Unit, Department of Medicine, Karolinska Institutet, Karolinska University Hospital/Solna, SE-171 76, Stockholm, Sweden.
Centre for Research and Development, Uppsala University/Region Gävleborg, SE-801 87, Gävle, Sweden.
出版信息
BMC Cardiovasc Disord. 2017 May 10;17(1):121. doi: 10.1186/s12872-017-0553-y.
BACKGROUND
ICDs efficiently terminate life-threatening arrhythmias, but complications occur during long-term follow-up. Patients' own perspective is largely unknown. The aim of the study was to describe experiences of hypertrophic cardiomyopathy (HCM) patients with implantable defibrillators (ICDs).
METHODS
We analyzed 26 Swedish patient interviews using hermeneutics and latent content analysis.
RESULTS
Patients (aged 27-76 years) were limited by HCM especially if it deteriorates into heart failure. The ICD implies safety, gratitude, and is accepted as a part of the body even when inappropriate ICD shocks are encountered. Nobody regretted the implant. Both the disease and the ICD affected professional life and leisure time activities, especially at younger ages. Family support was usually strong, but sometimes resulted in overprotection, whereas health care focused on medical issues. Despite limitations, patients adapted, accepted, and managed challenges.
CONCLUSION
HCM patients with ICDs reported good spirit and hope even though they had to adapt and accept limitations over time.
背景
植入式心律转复除颤器（ICD）能有效终止危及生命的心律失常，但在长期随访过程中会出现并发症。患者自身的看法在很大程度上尚不明确。本研究的目的是描述肥厚型心肌病（HCM）患者使用植入式除颤器（ICD）的体验。
方法
我们采用诠释学和潜在内容分析法对26名瑞典患者的访谈进行了分析。
结果
患者（年龄在27至76岁之间）受到肥厚型心肌病的限制，尤其是当病情恶化为心力衰竭时。ICD意味着安全、感恩，即使遇到不适当的ICD电击，患者也会将其视为身体的一部分而接受。没有人后悔植入ICD。疾病和ICD都对职业生活和休闲活动产生了影响，尤其是在年轻时。家庭支持通常很强大，但有时会导致过度保护，而医疗保健则侧重于医疗问题。尽管存在限制，患者还是适应、接受并应对了挑战。
结论
植入ICD的肥厚型心肌病患者报告称，尽管随着时间的推移他们不得不适应并接受各种限制，但他们仍保持着良好的精神状态和希望。
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